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@dollydaydream81 

dollydaydream81

Giving up meds

Hi there Looking for thoughts rather than an answer obviously but wondering what people think about cutting out all medication altogether? I'm on tysabri infusions aswell as other things but just lately the side effects are really kicking my ass just makes you wonder really? Love hearing other pe...

@asultana 

Last reply

asultana

Journey.

Interested to know if anyone here regardless of age and whether or not on DMTs, has had a positive journey with their MS? Tend to see a lot of negative experiences & I know not everyone’s MS journey is the same. But has MS been treating anyone well?

@Adventures6Dogs 

Last reply

Adventures6Dogs

Crap Gap?

I was just reading about “crap gap”. A “temporary worsening of symptoms that occurs between infusions” and I’m wondering if that’s what I’ve been dealing with for the past 3 weeks. Crippling exhaustion, brain fog, just feeling absolutely terrible like I have the flu but I don’t. Anyone else deal wi...

@Chem87 

EditedLast reply

Chem87

Menstrual cycle & MS

How are the ladies coping with the flare ups during their menstrual cycle. I’ve had to take this week off cause I just felt awful, from pain all over, to pins and needles in one leg and blurry vision in my left eye. Oh and extreme fatigue. I have ADHD too which comes with its own problems during m...

@Calthea 

Last reply

Calthea

Temperature intolerance

I was wondering if anyone who has experienced extreme intolerance to temperature has experienced a change and what that looks like for you. An example would be to go from being unable to handle heat to being unable to handle cold. Tia.

@TD24943 

Last reply

TD24943

Choosing a treatment

I was diagnosed with RRMS in June 2025. I’ve now been given the option to start treatment and they have given me 3 to choose from, Ocrevus infusion or injection, kesimpta injection or Mavenclad tablets. If you are on any of these treatments i would love to know your thoughts and experiences with t...

@Staceyc 

Last reply

Staceyc

Osteoarthritis

I don’t think this is connected to MS but I’ve had arthritis in my spine for 12 years so since I was around 23, now I’m being diagnosed with it in my knees too. The consultants always say im young to have this and I don’t work in a manual job. So basically just wondering what could be causing this i...

@peppersLia 

Last reply

peppersLia

Too depressed to tidy up

Am I the only one? I’m depressed since my diagnosis. I have little to no energy to do normal task. I’m either stumbling over myself. Or can’t concentrate long enough to follow through.

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