18 Jul 2014 17:53Last reply 27 Jul 2014 19:12
I'm with you on this one. Although I'd alter the tile of this topic to "UK Summer sucks", as it seems to be the addition of humidity that makes it intolerable......
I agree winter is much better I've been working outside the past couple of days and having to wear full PPE it's uncomfortable to say the least and a drain on energy to say the least,roll on autumn.
Hi @Dave c ... I can't wait for the Summer to end, this heat is suffocating! Just a few minutes out there and I'm an instant lead weight, I feel like that anyway but wow add this horrible heat & it's even worse...
I'm really hoping it ends very soon! Yes roll on Autumn! ... I'd just like to move somewhere cooler for Summer..........
Looking forward to 'season of mists and mellow fruitfulness'.....
Oh yes! Was hoping all the thunder storms would help but it seems to just be getting worse at the moment :( Like breathing treacle. Roll on autumn!
I'm hiding indoors with a fan and a cold hot water bottle... Roll on Autumn.. :-/
My Partner knows the heat affects me but she still expects me to do things like washing up and taking the bins out. If it wasn't for her being pregnant I wouldn't have the motivation to help. I am pushing myself a little to much in my opinion but it's so she doesn't have to.
I'm more then happy to go to work right now because I work in the chillers and my body temp is stable there.
Humidity is killing me. I simply can't function. Fatigue kicks in; I liken it to having a chain mail blanket dumnped on me. I try my best for my other half. He doesn't get it. So I just keep performing. 'til the end I guess. Ho Hum.
I can't believe I would ever say this because I love the summer, to just lay in sun was my idea of heaven, how many of you think someone out there just wants to take away everything you love, it's like a soap opera, now the summer?? (What Nxt) actually don't tell me. Lol
Is this how it will always be, from now on? Sun comes out, temperatures soar, parks fill with revellers and sundry summer-based amusements - while we sit indoors, waiting for the rain/autumn/winter etc. then the others complain about the chill.
Reminds me of a barometer ornament my mother's friend had years ago - Mr Wet and Mrs Dry.
I feel the same way...
The good thing about the summer is more Vitamin D inducing sunlight. As I already use a wheelchair when out and about, am personally a big fan of the summer. (and not just because the ladies are out! ;) )
Awaiting the day I get caught in a fatigue spell & a client walking in while I am half asleep on reception. I was okay until it surpassed the 20's, coming home everyday and go for a long nap. Sun is nice when I'm carted around in wheelchair or hiring the power chair & zooming around!
Hi all heat sufferers! I was recently diagnosed(couple weeks ago) and I heard about the heat sensitivity.. I'm curious, how will I know if I have it?
Did anyone later develop it or am I in the clear if I haven't clasped yet from heat?
Thanks for any information <3
I was desperately waiting for winter after the killer Australian summer just gone (seriously, it got so hot my toilet melted!!), but now I'm finding winter (granted, and Australian one) nearly as unbearable.
@Zondie, welcome to the forum.
MS affects different people in different ways, so you may experience some symptoms and not others.
Here's a little bit about heat sensitivity/intolerance:-
Hi @zondie. I used to read about heat problems, Dr asked do you feel worse after hot bath? I thought it was nuts, go to Marbella every year, Maldives etc just lay in sun get very tanned, until this year, I was DX 2 years. Now if I sit in sun (which I still do) I need help getting back to my feet, on my own other day in garden, needed loo, had to roll off bed onto knees and climb up a chair, non of this might relate to you, as stumbler said, MS is Exiting,, you never know what's coming Nxt. (KEEP FIT) now don't wait till you need to get fit,, if that makes sense,
I have to agree with this one!
Humidity making it worse as one day bit cooler and rain then very hot again so stupid amounts of humidity. I am so tired yet sleeping ok, finding everything hard.
I admit I moan about winter as I feel the cold bad but would love that weather now. At least I can turn the heating on, put a jumper on etc to escape it but there is no getting away from this heat :(
This weather is killing mw!! Fatigue, can hardly walk like my legs stiffen up so much, uncoordinated and loss of balance, its absolute hell!!! I feel like a prisoner in my own home!!! And living in London its so humid too!! Eeeeek.
For me I cant function when it's too hot anything over 20 degrees really. Just back from Spain where it was in the mid 30s. Completely drained and was also pushed around in a wheelchair. I am uncoordinated and unbalanced even worse than usual. I still like sitting out in the sun but just have to be aware how it affects me.if I sit in direct heat for too long I won't be able to walk. Really all I'm fit for is sitting out reading a book or magazine. Luckily our summers in Ireland aren't great. Hot at the moment though.
All new to me and its simply amazing what the body can do, and does to you. :0/ I love the summer, still do, even if its just to get my washing on the line and watch it blow...but, gutted as place we have gone to all my life, I am scared to go this year as its down a steep banking, and im scared about trying to get down as knees give way often, when you least expect it, and if i was to sit in the sun, i don't think I'd have the strength to climb back up it, and i'm too flipping fat to be hauled back up but oooh, the thought of getting in the river for a swim in this heat...
Its a bag of laughs having MS and drop foot in this weather, I look like one of those giants on Its a knockout that always kept falling over :)
I've hardly gone out for the last few days except 1st thing to get provisions for dinner. Dinner has mostly been salad, yet my trousers are cutting me in half.
Having weighed myself, I find that I'm the same weight as I have been for the last 10-15 years!
My assumption, therefore, was that sitting around like a pudd'n' has relaxed my stomach muscles, so I can't retain the stomach I've had all these years.
I have resolved to do leg-raises in the cool (and privacy) of my home.
Some good might come of these house-bound days.
I agree, summer sucks! Yesterday was so hot and humid here as well, and I'm so thankful that I have air conditioning, I don't know what I'd do with out it! But to be fair, I live in Canada, and I'm not so fond of winter here either ;)
Totally agree with u all. Does anyone else feel like they have tight bands around their ankles,? Also such bad dizzy spells..this humidity is dire..to make matters worse I have to stand doing hair all day..with a smile on my face,when all I want to do is melt..we've all gotta look after ourselves and keep hydrated
Let's hope the forecast is right & the temp dips a few degrees next week. Today has been horrid :(
I live in Finland so it doesn't usually get this hot up here, but now it's been about 30 degrees C every day this week and doesn't seem to be letting up for too many days to come. I feel as heavy as a black hole and my train of thought derails every five seconds or so. Also looking forward to the long, cold Finnish winter but it too will suck in its own way when that time comes. Everything is relative I guess. :)
I hate it too :( I have so many more aches and pains, balance problems and crippling fatigue in this weather it also doesn't help being unable to sleep because of the heat and the pain :( Roll on autumn I say.
Ugh, me too! My apartment doesn't cool down at all during the day, even with the AC running all day. I just want to jump into a pool of ice water.
We should all do a rain dance! :cool: ....
I so can't wait for this heatwave to end................
I've just bought this cooling spray for holiday coming up in September, not used it before but I think it's what I saw the medics use on the players during world cup, hoping it helps =)
I've got a Tesco just a few hundred yards up the road so I've been finding excuses to go and spend some time in the chilled aisles - it's bliss! I'm about to buy one of these too, and see how much difference it makes - https://sites.google.com/site/soocoolproject/
For me though, nothing works as well as a cold shower. I start with it lukewarm, then take the temperature down as low as it'll go. It chills me to the core, so will keep me cool for a while. If I haven't got time for a shower, then a quick fix is to hold my wrists under the cold tap for a few minutes with my hands bent back, exposing the veins to the cold water. This cools the blood down, which in turn cools the rest of the body down.
I also buy bags of frozen berries from Tesco to suck on frozen, or slice up bananas & lay them out on a plate and freeze them, then prise off a few for a quick (healthy) cold snack (if you put them all in a blender it makes the most amazing ice cream).
@The Pond that's exactly why I love going to work right now. I specifically told my employer I need to be in the child isle.
The only time I see the sun at work in when I walk to work and take a cage out after I have worked it.
I don't start work until 5pm so the hottest part of the day is almost over anyway.
I find it isnt the sunshine that gets me - more the damned mozzies! I react very badly to being bitten by anything; horseflies, gnats, mozzies whatever. That makes me worse.
I actually cannot wait until Winter my god!!! Literally everyday i cross off in my diary as it is another day towards autumn then winter! Trying to walk in this weather is zoo bloody hard my god like have to really think how to do it!!
Have you tried a scooter?
Rebecca hi. Reading what you wrote, plus others is great, I thought it was just me, seems ridiculous that the legs just won't go, it's. like having stilts on, it's my 1st time quit like this, hard to belive it's down to the weather, really can't belive it will improve when it cools down, so can't wish for winter that iv always hated, mabe Nxt year. Lol
Heyy nooo i refuse to use a scooter or wheelchair maybe its a huge denial but still. I do have a stick which i use round the house but i refuse to take it out! I have been diagnosed over 2 years and have a huge problem accepting this crap!
Well ,socially is like telling everyone that you have ms ,it is a big step. It is better if you can go without it, is a bit addictive and it stops you from making the effort.I use it because I want to keep doing as many things as possible outdoor .
I was invited to Indietracks pop festival yesterday. I've gone every year since it started in 2007 (I don't know why, the music's crap). After having spent almost a week as a recluse in the searing heat, I accepted, believing it to be slightly cooler. How wrong could I have been?
I couldn't tell you how hot it was (numbers are irrelevant), but I spent my time, after being there for about an hour, looking for shade.
I could find some shade, but no seat or a seat in the sun.
I did find seating and shade on the railway platform (festival takes place at a railway restoration museum), but having been sitting there for such a long time, the platform staff became concerned and ushered me to the 1st aid van. I did explain that I'd be ok once it had cooled down. Nonetheless, I spent the next 2 hours in the company of Red Cross and for that, I thank them. My body temperature reached 37.5 C.
However, I can't complain - I spent a cool 2 hours, with a stream of ice packs, in decent company and missed a lot of the music. Just a shame that it cost me 40 quid for the pleasure.
Upside is, that once the temperature dropped, I could come out and socialize with folk I hadn't seen probably since the last Indietracks one year ago.
Temperature has gone down today, thank God, but I won't be going back today. ;)
Yea my neurologist always tells me to avoid it and emotionally think i would break down so couldn't face it! Good on u!
Ahh good on u for going very impressed! I have been a complete recluse for weeks its mad!! I used to be such a sociable girlie and now thats completely flipped!
I get ridiculously hot feet, thanks to having to wear orthotics plus having a splint which has a metal sole and two metal springs which go up to the calf. I can't go without socks and I can't wear sandals because of the shape of the orthotics. So while the world is in shorts and strappy sandals, I'm there with my socks, trainers and trousers. Pathetic! I decided to try some cooling products and saw a range in Body Shop - pleased to say they work! They're peppermint based so not too perfumed and could be used by men too. There's a cooling cream for the feet, a spray for the legs and also a cooling gel. They often have offers, 2 for 1 etc so not too dear.
I felt like that too at first @Rebecca, didn't want to use the stick let alone be seen in a wheelchair or scooter. That all changed after being house bound for a month, July is it's 4th month and the only time I get to go out is if I hire the power chair or my bf takes me out in the regular wheelchair, just 5 minutes of being in the fresh air or in the sun makes such a difference mentally.
Ever since I fell over in Euston station after my legs decided they weren't going to support me anymore, the decision to use a wheelchair was very straightforward for me. Have never been embarrassed about it - it basically allows me to do everything I want to do (Go to gigs, watch football matches, meet friends in bars and restaurants etc)
I think I have the advantage of doing all these things around Watford and London, but everywhere is becoming more wheelchair friendly, which is a good thing :)
Here're is an unexpected benefit of MS in the summer : when you are lying panting on the sofa, you can't feel the flies landing on you skin!
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