Trial or not?
Firstly hello everyone.
I was given my active diagnosis of Relapsing MS in December, then there was mention of a trial, today I received an email with the details.
Info of the trial drug is on the https://www.mssociety.org.uk/ms-research/treatments-in-the-pipeline/ocrelizumab
My question to everyone is... Is it worth risking a trial when the alternative drug in the trial is a weak first line compared to the alternative known non trial drug?
My appointment is on Friday so responses would help please.
That's a tough call, @letha . I actually thought that Ocrelizumab was about to be licensed? It is looking to be the next drug of choice. So, how do you feel about taking part in a trial? You'll have the benefit of having your MS closely monitored for the duration of the trial. It all depends on how active your MS is and whether your Neuro feels that it would be a good move.............
I wouldn't take any trial drugs to treat my ms. Reason been 1 I could end up with the placebo and 2 if I get the trial drugs I'd be afraid of it not working well for me. But at the end of the day where would we be right now for any form of treatment not just ms treatment if it wasn't for all the brave people who allow drugs to be trailed on them in medical trails. We would be a lot worse off. You have to make a decision which yoi feel is right for you. Good luck