@kea21 

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kea21

Tysabri

Well as expected my Neurologist wants me to start Tysabri, I kept saying that I wasn't happy and he kept saying Yes you are! But I am still NOT, If Lemtrada was available here I think I would definitely go for that,but like every thing here we are way behind, it took 8 years longer than Australia to get Gilenya and Tysabri? I am taking Gilenya every second day,but my vitals are still low,white blood count 1.9 last week? On the day I don't take I am a box of birds,as normal as I can be! Again I really Don't want this Tysabri! And am considering just not attending! I have voiced my concerns_But? It seems even on it,if you tolerate ok, the average time until you have to stop though becoming JVC positive is two years?
@LucyH

Hi there! My friend is being treated in Ireland and has been on Tysabri for about seven years. Yes she is JC positive and the odds go up every year of her contracting PML. For her, Tysabri has been a lifeline. I, on the other hand, am living in the UK and have been offered nothing for my MS. It's hard to know which advice is the best, and what you can cope with without drugs. Take care, XXX

@mmhhpp

Can i ask you why you are moving from gilenya to tysabri? I am on gilenya too but i am not sure if it is still good enough....