@TracyD

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TracyD

TracyD's Lemtrada Updates and Blog

I started it yesterday with 33 days to go. I'm doing a lot of proactive preparation before the treatment starts so I wanted to track that and my thoughts and feelings in the lead up to it. I hope that it can be helpful, informative and provide some support for people considering Lemtrada over the next few years as the blogs by @US-Emma, Glenn Scott (who I don't think uses here) and some of the other Lemtrada patients have been for me Enjoy xx http://tracyslemtradajourney.blogspot.co.uk/

hollylb10

@hollylb10

Well done Tracy! I will be following your blog, I love your fighting talk! I will nor surrender to this monster either and hope to join you on Lemtrada one day :) I look forward to reading your updates :)

US-Emma

@US-Emma

Thanks for doing this! Will be reading & cheering you on! 27 days & counting!

TracyD

@TracyD

@Sandwich @hollylb10 @US-Emma Thanks guys, it's a bit chatty and random, but I hope it reflects what I'm doing to prepare, how I'm feeling and what symptoms are actually like in the lead up.

Hannah015

@Hannah015

Brilliant @tracyd been reading your blog, very interesting. Good luck with it Hun xx

TracyD

@TracyD

@Hannah015 glad you've take a read :-) @Sandwich I'm going in as an inpatient, Southampton is about 35 miles from Basingstoke and I don't think they'll be letting me drive back and forth, if they decide I can do outpatient I have friends in Portsmouth who will run me there and let me use their spare room I'm excited about getting started, i just want to know it's not going to get worse, and if it gets a little better then it's a bonus xx

StephenBurns87

@StephenBurns87

Hi Tracy, I befriended you sometime ago because you are looking at Lemtrada and I was trying to find someone who has tried this drug and their person experiences as I was looking at going down that route. My appointment is next month with my neuro and she was looking at Tysdabri but I think I'm eligable for Lemtrada. I was interested about your experience of this drug but you are waiting!! Hope that goes well. I'll contact you a little later to find out what horror stories ( I hope not! ) come with Campath 1-h ( Lemtrada ). Perhaps talk later, Stephen Burns ( AKA stephenburns87 )

TracyD

@TracyD

@Crosby#87 Burns Stephen If you're up for that coffee in Festival Place Stephen I'll be there around lunch time tomorrow so I can get Thai food for dinner at Market Place :-) The blog has loads of links for useful and helpful stories, the two facebook groups I've linked are pretty amazing communities and 24 days to go and then I will be telling my own experiences

US-Emma

@US-Emma

Stephen, I'm happy to answer any questions. I had Lem #1 in April 2014 in Germany. Things have gone much better that I could have expected. My best wishes to find the treatment that is right for you :) Tracy, My regular neuro visits in the states are 50 miles away! I guess things just are not as convenient here :( Germany is the opposite of convenient to Fort Worth, Texas! A hotel stay was definitely in order for the infusions. My husband was with me and I had the docs cell# for after hours emergencies! but there weren't any. I am glad it wasn't inpatient. Hamburg was infusing foreign pts at the time in- patient, one reason I chose Dresden. I could not have had better care.

TracyD

@TracyD

@US-Emma when are you getting #2 Lemtrada ? Good luck for it, I hope that it works as well as #1 xx 18 days to Lemtrada day .... I think the butterflies in my stomach are taking line dancing lessons so I'm taking them to Portugal on Saturday for a week to quiet them down with lovely wine and food :-) All updates on preparation,, vitamins, Oxygen Therapy and water consumption are on the blog :-) http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

@Sandwich .... 17 days now :-) Blimey that's a busy month, new job, new home and new immune system, good luck with everything xxx

TracyD

@TracyD

@Sandwich 11 DAYS TO GO :-) I can highly recommend a break before treatment to get yourself relaxed - Portugal is lovely and warn and sunny so it's helping with the water intake :-) This is where we are staying http://www.jamesvillas.co.uk/destinations/portugal/algarve/silves/quinta-das-palmeirinhas-4377 Bit more of an update here xxx http://tracyslemtradajourney.blogspot.co.uk

northernlass

@northernlass

Hi @tracyd Just read your blog... totally brilliant and I look forward to reading more and more and more... very amusing. :D Few questions.. when you go for your oxygen therapy is there a criteria for getting that and do you need someone to drive you home afterwards..?? I'd like to try that but my nearest oxygen tank is about 15 miles away so I would need to be able to get there and back by myself.. :D

Stumbler

@Stumbler

@Northernlass , breathing oxygen under pressure is quite natural. if you couldn't drive there and back, then it wouldn't be viable for MSers. :wink:

TracyD

@TracyD

@Northernlass I go to the MS Therapy Centre in Reading, it has a big car park, with lots of disabled parking .... A bit far for you I guess ;-) I went and viewed the facilities they answered all my questions, you have to start at the higher depth and work your way down to lower ones (I do 33ft I think. @Stumbler does 16 or 24) they inform your doctor you are doing it, but didn't need to talk to him first. It is donation based, the recommended for an MS patient at mine is £10 a session (apparently the Reading football team pay considerably more when they want a go) Breathing oxygen surprisingly is quite hard work, they say you might be a little tired afterwards and tea and coffee and cakes are available if you need to rest up a bit. To be honest when I come out I feel on top of the world, energised my head is completely clear and I could take on the world (well a bit of it anyway) Nothing to lose by giving it a try :-) xxx

TracyD

@TracyD

Hey @Sandwich ..... 4 days to go :-) Hope you've been drinking lots of water :-) Are you ready for this ? I AM - BRING IT ON :-) xx http://tracyslemtradajourney.blogspot.co.uk/

US-Emma

@US-Emma

@sandwich too, Good Luck to both of you next week! Here's to a successful & Drama Fee infusion :) Take care!

TracyD

@TracyD

@Sandwich Good that their timing is helping your schedule x Do you use facebook ? If so there's a Lemtrada group for UK and Ireland which is linked in one of the first posts on my blog, there are loads of people posting daily as they get there infusions (I will be one of them) lots and lots of information and progress reports it's great preparation, make sure you start upping your water intake now though or you'll be on a bungee cord to the bathroom during your treatment, it takes a couple of weeks to get used to that volume of water xx

TracyD

@TracyD

One of the things that happens as the infusion goes through your body is it can give you the most monstrous headache For those who didn't drink enough they describe it as ice pick in the brain, those who have drunk enough repost a mild headache easily resolved with Paracetamol. The water consumption holds it off for the most part :-)

TracyD

@TracyD

Day 3 of Lemtrada done Only side effect so far is the spike in the head style headache which regular Paracetamol keeps under control. Feeling pretty epic overall which I know is a temporary thing as a result of 3 days of IV steroids. If my journey tracks last weeks Lemmies then tomorrow should be 'rash day' which I guess all the vitamins and minerals and oxygen treatments in the world won't stop if it's going to happen. Is it silly that I suspect I will feel a little cheated if I escape that one too ? All things considered it's been a walk in the park so far, and I feel pretty awesome actually doing something to fight this :-) xxx http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Day 4 in progress Day 3 was great, I think all the preparation I did has paid off I've had only the headache as a symptom of the treatment whilst others having treatment this week are reporting severe fatigue, exacerbation of relapse symptoms and all saying how hard drinking the water is. I got a little Lemtrada rash on my arms last night but the Solarcaine took the itch away in 45 seconds and he rash went down almost completely in an hour. I've woken up today with patches of rash on but ass cheeks :-) applied gell so no in appropriate scratching so far. Infusion plumbed in at 11am so a bit later than I'd hoped I've asked can they kick off extra early tomorrow so I can escape at a decent time - mostly so I can go and get some shopping done and some decent wine for Friday night :-) Live updates going on the blog as it happens xxx

TracyD

@TracyD

Blog updated again - now 12 days's post and it's going well, some improvements that I can't yet identify as Lemtrada originated or IV Steroid originated, blissfully free from most side effects too. Apologies it's not been updated more often this week, but with the devastating loss of my brother there are other things I need to focus on http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

It's been a really shitty time personally this week, but if anyone is interested in how the treatment I had to take control of my MS is going .... Officially 2 weeks post treatment now, I've had some improvements - I have the feeling back in my legs and 'some' feeling back in my left arm - no fatigue or cog-fog. It could be the steroids or the treatment - but hey I will take that ..... I'm not totally FUBAR and improvement is possible !!! More on the Blog xx http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Another update added post weekend - still all good MS-wise in the world ladies and gentlemen xx http://tracyslemtradajourney.blogspot.co.uk/

Helena

@Helena

Hiya Tracy Your blog is so inspiring and informative and it's great to learn that your feeling well and your Ms symptoms have improved. Keep taking it easy and thank you for giving us all the real time info on life during and after Lemtrada we are lucky readers to have you! I have recently had a 2nd scan to see if my Ms is active or have any new lesions this will determine what treatment I can have. Lemtrada is a possibility.... Take care and keeping popping the vitamins....I will continue to read your progress with much interest best wishes to you.

TracyD

@TracyD

@helena I had hoped it would,give people a real time view of what happens, when and what effects. The vitamins, minerals and oxygen therapy are my own additions to the recommendations. For now it seems to be working. Good luck with your scams and choices xxx

TracyD

@TracyD

Day 1 week 4 update added to Bob The Blog for lemtrada treatment with another improvement :) Take care of yourselves xxx http://tracyslemtradajourney.blogspot.co.uk

TracyD

@TracyD

Mid week 4 update is now up on the blog, more improvements to report :-) http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Mid week 5 update #Lemtrada for #MS #MultipleSclerosis treatment #KickMSinTheNuts feeling better every day xxx. http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Week 6 update for #Lemtrada treatment for #MultipleSclerosis #MS available. Still feeling improved and EPIC xxx http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

First blood results for now published nobody seems concerned but it's all Greek to me, if anyone has any thoughts / observations please let me know xx http://tracyslemtradajourney.blogspot.co.uk/

KrisP

@KrisP

Glad to hear it's going well Tracy 👍

TracyD

@TracyD

@Sandwich It certainly does, my second tests are looming now and I'm quite excited to compare the two :-) how are you doing ? xxx

TracyD

@TracyD

End of week 6 post #Lemtrada treatment for #MultipleSclerosis #MS improvement update added #KickMSupTheArse http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Mid week 8 update available for you all, still doing really great :-) http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Week 8 done and dusted and I'm doing great. 2nd lot of bloods and pee done today :) Also pilfered yesterday's posts back from here :-) http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Hi ladies and gents -week 9 early update available #Lemtrada for #MS #multiplesclerosis treatment improvements thanks to #Turmericlife into treatment http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Month 2 blood tests are in :-) They lymphocytes they are rising :-) I can officially leave my bubble at work YAY :-) http://tracyslemtradajourney.blogspot.co.uk/

mumofmser

@mumofmser

Anyone have acid reflux issues with lemtrada, daughter on day 4 and started with reflux symptoms.Gavison helps but not sure if will need something more like omeprazole for a while x

US-Emma

@US-Emma

This is likely the steroids, not the Lemtrada. Immediate relief would probably be obtained best with a coating med- like carafate or kaopectate. Pepto Bismal is another alternative. She should be on Ranitidine (Zantac) as part of her preventive meds, this helps in the step prior to Omep in decreasing acid release. Omeprazole will help with the feedback loop but will take more than 12 hours to start helping. Still I would start it, but also start a med that coats for immediate relief. Note, coating meds often turn stool a black color, this is not harmful, but just an FYI. Best Wishes to finish the week strong! I am 17 months out from my first Lem dose and am doing fantastic! It has meant a turn around in my symptoms. Pi was diagnosed 12 years ago and never thought I would see this type of symptom reversal! And I am a nurse! Take care, Emma

US-Emma

@US-Emma

@tracyd, Glad to hear you are doing so well. I have been keeping up with your posts though your posting to this old thread bc I have been lazy in my MS blog participation- I don't spend much time on MS anymore, which is wonderfully amazing! Do you know if Hannah was ever approved? Take care, Emma

Hannah015

@Hannah015

Hey @US-Emma So glad to hear you're doing so well and how well @tracyd is doing :) QE in Birmingham finally got approved to provide Lemtrada. I'm going to be there first outpatient to receive it. Starting 17th August :) hoping they receive backing from the board too provide it more. At moment they are only been given one bed to provide Lemtrada. I have spoken to so many people that still aren't aware of this treatment which I find concerning that no one is being advised about. Even spoke to one ms nurse that hadn't heard of it??? But now people are becoming aware lets hope more people receive it in near future Xx

mumofmser

@mumofmser

Hi @US-Emma and @Hannah015 Thanks for the info Emma for some reason gastro protection isn't protocol here but got her written up for zantac as omeprazole theoretically increases risk of clostridium difficile. Last dose going up just as I type. She is just desperate to go home. Home this afternoon all being well. As for access to Lemtrada its so unfair that we have a post code lottery. I realise now how fortunate my daughter has been to have this first line with no hassles. Just been chatting to MS nurse who can't understand why other centres are not be more proactive. The criteria for lemtrada is really wide and the funding comes direct from NHS England. Good luck Hannah for August. X

TracyD

@TracyD

@US-Emma Good to see you back online lady, you've been missed !!!! I'd started to wonder if in your post Lemtrada recovery you'd gone backpacking round the world with no interwebs xxx Wanted to ask, have you seen my bloods ? I'm not getting CD counts like you do, what should I be asking to be included in the tests to get that as well please ? @Hannah015 .... hope you're already sloshing back the water, have you seen the Turmeric paste post I made .... even the dog is better in her joints on that :-) x @mumofmser thinking of you guys, steroids are vile, they make everything inside you taste nasty, peppermints might also help if taste is still an issue xx

TracyD

@TracyD

Week 9 done and dusted. Still getting better and better :-) http://tracyslemtradajourney.blogspot.com/

US-Emma

@US-Emma

@hannah015 Keep spreading the good word. That was one of the main reasons I joined shift and kept up the blogging for the first year- to spread the word. So many people like @tracyd and @sandwich are doing that here and elsewhere that I took a break :) I have been working with a few Aussies recently, one who had Lem in May and is coming to the US for grad school in the fall. We worked out the details of her care transfer, a positive experience :) @tracyd Your labs look good. I am traveling so it is more difficult to look over everything on a tablet but I can do a full review if you want, compare yours to mine etc- let me know if that would be helpful. Send me the first day of your infusion so I know what date was your baseline. Your blog is fun and newsy- I bet it is very popular with your chummy way of welcoming people into your world. You sound like a fun gal to hang with! So so happy @hannah015 is going forward in August! That is about a year from when they wanted you to start, right? About **** time :) if you have any questions feel free to send me an email- I can send it to you though a private message on here. Blessing to all, 2016 is going to be an awesome year for 2015 Lemmies! Emma

Hannah015

@Hannah015

Thank you @mumofmser Xx

Hannah015

@Hannah015

@tracyd I did thank you I shall be having that myself and also I have upped my water. Having oxygen therapy still too which is definite helping brain big massively. Still can't believe Drs and ms nurses (round here anyway) don't even advise you of the ms centres and oxygen therapy when getting diagnosed. Crazy. Anyway loving the blog :) xx

Hannah015

@Hannah015

Thanks @US-Emma that's very kind, I may do that. I'm the only one having it at QE cause they are not allowing anymore than 1 bed which I think is bad but then at least it's finally approved here. Been a hard slog of annoying the board at hospital to get them to agree too do it :) it's nearly a year since they says they would do it. It's been one excuse after another but the main thing is I'm now having it :) thanks for your help since then and advice, you're fab xx

TracyD

@TracyD

Mid week 10 update posted along with baseline bloods from before Lemtrada because apparently I'm not the only Saddo that is recording everything in spreadhseets :-) http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

So later today I have my first appointment with my Neurologist since I had Lemtrada. Strangely I'm really nervous - feeling sick and slightly shaky nervous - I know I'm being illogically silly, I'm probably going to get a big hug from Dr C and congratulations before I get stabbed with the pointy stick of doom and feel it for the first time ever :-) So part one of today's update is here >>>> http://tracyslemtradajourney.blogspot.co.uk/ Love and germ free whatsists .... :-) xxx

TracyD

@TracyD

Oops .... I posted Neurologist day Part 2 last Thursday and apparently in my blondness forgot to mention it here :-( Mid week 12 update is also now published and I know it's getting boring and old now, but I'm doing great, no complaints, moans or problems :-) http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Week 13 #Lemtrada treatment for #MultipleSclerosis #MS published EPICNESS continues I've #kickedMSinTheNuts xxx http://tracyslemtradajourney.blogspot.com

Hannah015

@Hannah015

Hey @tracyd hope your eye gets better really soon. Sounds like you're doing brilliantly. Had my first treatment today, had flu like reaction but feel ok now. Back again in morning for next infusion xxx

TracyD

@TracyD

@Hannah015 So pleased that your treatment has started at last, hope the reaction settles down so it's all just nice and relaxed for the rest of your treatment. I have no idea how I managed to scratch my own eye in my sleep - Gareth is still claiming innocence :-) Doing fantastically well post Lemtrada, now we just have to see if the move breaks me :-) Still waiting on the month 3 blood test results should get them tomorrow fingers crossed - hoping the lymphocyte count is still on the rise :-) xx

Hannah015

@Hannah015

Thanks @tracyd felt like the longest wait ever, but worth it. I don't feel too bad after the Lemtrada but at time of infusion I'm practically passed out each time lol. You and Emma are my inspirations :) Still claiming innocence, how funny. Maybe you snore ;) That's great news, your blog is fab, been keeping up with it. Helped me loads :) I'm sure you will be brill and move will go well. You have coped brilliantly with everything you have dealt with so far so I know you will cope brilliantly with move. Then hopefully you can relax a bit :) Xx

US-Emma

@US-Emma

Currently on vacation but following your week Hannah! So glad for you. I was wiped at the end of the day too, even slept a few days for good measure. :) All that wicked MS **** is about to be behind you- Yipee! All seems 'set right' with the world now that you Lem week has finally arrived. The site you opened up with your advocacy will benefit SO many to come after you. They all have you to thank, whether they know you or not. I motion that the wing of your hospital be dedicated the Hannah Beats The Pants off MS Wing, and we all thank her very much for starting it all! Who's with me?

TracyD

@TracyD

@Hannah015 I found that the IV anti histamine was what knocked me out, it's the super drowsy kind that they squirt into your cannula, it certainly helps pass the time :-) xx Thank you for the kind words about the blog, someone said it was nice to see now that the blog was about how hectic life is with some Lemtrada stuff thrown in now rather than the other was round showing that this gives you your life back as @US-Emma says, it's lovely to be so active, busy and 'normal' that MS is no longer something that dictates your life to you xx

TracyD

@TracyD

Week 14 update published, still going really great http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Two more updates added, a potentially controversial one about the misconceptions that people have about what Lemtrada 'actually' does to you and another short one that puts some of the risks associated with Lemtrada in perspective. I'm going to put my tin hat on now - I suspect I might get a few sharp responses to the first one :-) xx http://tracyslemtradajourney.blogspot.co.uk/

US-Emma

@US-Emma

Tracy, I tried to post a comment on your blog but it posted the comment to my sis in law's blog about her trip to Nashville ?? Weird Blogger- Anyway- wanted you to know I really liked your common sense post about good general health tips and the action of Lemtrada- i think that will help a lot of people who might misunderstand the drug's mechanism of action- well put! I need to listen to your fizzy pop comment- I am a terrible Diet Dr. Pepper fiend- its a Texas thing... Take care! Emma

TracyD

@TracyD

@US-Emma Lol at the sister in laws blog redirect of the comment :-) I had the text for the misconceptions post reviewed and updated based on comments from Gavin Giovanni before posting it. I didn't want to put something incorrect or make it that people. Ugh the believe my personal comments were medical expert opinion. Gareth says it reads like a drill instructors morning instructions though :-) I'm not a big pop drinker, I've even cut out coffee after lunch - mins you my morning coffee is I a mug the size of a bucket :-) Coming up on 14,000 views now on there, I hope it's doing some people some good :-) xxx

Ahmed

@Ahmed

Hello, I am new here, recently been diagnosed and working out which DMT I might take.My nurse recommended that I take Alemtuzumab/Lemtrada because the result of my MRI scan was shocking and he also said I carry many 'risk factors'. (ethnicity, age, gender) I read almost all the scientific literature on Lemtrada but I also like to take into account personal experience. So I might ask away at you guys. I started reading Tracy's and Emma's blogs and they covered many of my queries. But I might have few extra ones till my appointment with my Neuro next month Thanks Ahmed

US-Emma

@US-Emma

@ahmed We are always happy to answer questions. Ask away :) My Emma blog stops after 1 year. I continue to improve and really consider Lemtrada the BEST option for newly diagnosed patients, especially males. If you are being offered this I would not consider any other option. Go straight to Lem and set MS 'in its place'. That is behind you, with a bright future ahead! Take care, Emma

TracyD

@TracyD

@Ahmed Always happy to talk I have Skype, FaceTime and if you're UK based give me a call with any questions PM me if you want that Xx

Ahmed

@Ahmed

Thanks Tracy and Emma. You gonna see plenty of me in this thread in the coming few weeks/months.

TracyD

@TracyD

We also need to start collating what we are all doing proactively that both positive and negatively affects out results and perhaps replicating them .... Particularly the positive but a,so how to combat the negative we can help other people with out experiences cc

Caterpillar

@Caterpillar

@tracyd Big thanks for the blog, I really liked your "blood tests and all" approach. I am not sure I have the guts to go for Lemtrada, but it kind of helps to see that people take it with a smile.

TracyD

@TracyD

Week 15 #Lemtrada for #MS #MultipleSclerosis published. Doing great and loving life post treatment http://tracyslemtradajourney.blogspot.co.uk/ xxx @Caterpillar good luck with your choices, for me, MS taking my sight and my legs scared me far more than a few side effects that can all be controlled with medication. Don't forget Lemtrada has one solitary purpose to explode the T & B Cells and allow them to be flushed out of your system in a few short weeks - After that your own body is the thing doing all the work while it's not under attack :-) xxx

TracyD

@TracyD

Week 17 update published - http://tracyslemtradajourney.blogspot.co.uk/ xxx I've got this all sussed - MS is MY bitch :-)

TracyD

@TracyD

Late Week 17 update - I'm still doing great thanks to a cheeky HBOT on Tuesday night http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Start of week 18 published. More heartbreak but MS stays under control xx http://tracyslemtradajourney.blogspot.co.uk/

cherish

@cherish

Bad leg sacked for 2hrs..... Your humour great ? ?

TracyD

@TracyD

Month 4 blood test results are in and published. The Lymphocytes they are rising :-) http://tracyslemtradajourney.blogspot.com/

Ahmed

@Ahmed

@tracyd How much time off work did you need to take after your last Lemtrada infusion?

TracyD

@TracyD

@ahmed I had no time off at all. I worked from hospital during the infusion, worked from home the week after infusion and was back in work the following week albeit a bit hit and miss, I lost my brother a week after the treatment so I had some compassionate days to sort out things :-(

Ahmed

@Ahmed

@tracyd Sorry to hear for the loss of your brother.

Pita

@Pita

Much thanks to all posts here. As far as I know I am months away from my own Lemtrada journey. My MS team has just started participating in the REMS program & currently only has a handful of patients about to start Lemtrada very soon. I told my MS RNP that I will happily become a crash test dummy for Lemtrada because I have absolutely nothing to lose & tons of health to possibly gain. I have struck out on beta/ copax/ ldn & aubagio. My Tysabri experience left me feeling no changes with my MS but I will happily go back on it while awaiting Lemtrada because not using a DMT / dmd is not an option for me personally. Best of luck & health to all!

TracyD

@TracyD

Week 19 update published - holiday, life MS stuff etc http://tracyslemtradajourney.blogspot.fr :-) this week I'm .fr :-) Xx

TracyD

@TracyD

Week 20 - Recovering from France and now back to a boring .co.uk :-) Week 20 post #Lemtrada for #MS #MultipleSclerosis treatment recovering from the holiday in France http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

well here we go again, Week 21 in progress guys and girls, still doing great and the 5th set of blood tests get done tomorrow http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Week 23 now. Somehow I seemed to forget to post the Blood results link in here from Last week. Lymphocytes are cooking away quite nicely. I'm now just slightly over half way to the lowest acceptable level of Lymphocytes. Slowly and surely they are coming back up and from the experiences of those before me slow and sure means the better long term results, they've forgotten to be bad MS ones and just behave themselves. This week I've had another big positive - I'm no longer only able to wear flat shoes WOOHOO .... perhaps I'll refrain from dancing in the heels for a little longer though :-) xx http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Week 24 -nearly halfway to round 2 - symptom and progress update and stuff http://tracyslemtradajourney.blogspot.co.uk/

TracyD

@TracyD

Week 25 update to blog and I'm still doing great, interwebs love, virtual hugs, air kisses and anti bacterial handshakes to you all xxx http://tracyslemtradajourney.blogspot.co.uk/