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@ScarletClarke 

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ScarletClarke

Ocrevus crap gap

Has anyone else struggled with the so called “crap gap” in the week or so leading up to an infusion? I’m sue my next one on the 7th of June and I feel awful. The fatigue is next level, I’m exhausted no matter how much sleep I get, I have an incurable headache the brain fog is ridiculous, I’m forgetting everything! How have people dealt with it?
Sheffield, UK
12
@Ropehoney1
@Ropehoney1
 

Yes yes yes!! I found this out the hard way when about a month before my infusion walking, balance and neuropathy kicked off big time i was scared it was another relapse and my nurse said it was just because drug was leaving my system , at least i know what to expect and jus gotta ride it out 😫

1
@GerardMcC1
@GerardMcC1
 

I can't believe I've logged on to search for what your talking about. I've haven't been as bad as I have in he last week or so. I'm scheduled for my second Ocrevus infusion next Wednesday. So it does actually run out - that's exactly what I meant to ask. Thanks for your post. I'm with you - hope your next infusion goes well.