I’ve thought the exact same thing lately

@tracey182 it just seems that ms is absolutely relentless

Hi, I'm not on any meds for pain but get lots of nerve pain, i have started meditation and mindfulness on an app on my phone there is lots advice to help with pain, at first i didn't think it would help but it does really helps relaxing as well, also as your mum thought about CBD oil? a lot of people says it helps with pain

@Lframe , you need to understand the cause of the pain, before you can get the right treatment. This article may help:-

https://mstrust.org.uk/a-z/pain

Then it's a question of finding the right medication. And then the right dose that works.

There are great days, good days and just the days that I don’t count

@simona2 I bought her cbd gummies from Holland and Barett just before she went into hospital 3 weeks ago, she got out today but not sure of to continue with gummies with all the new medication

@stumbler thanks you are full of great advice. She got discharged from hospital today with oxycodone m/r tabs, oxycodone liquid, tizanidine, carbamazepine, amitriptyline and paracetamol. She is still in pain, she has to start dmt in 6-8 weeks time needs to her covid vaccine first. I’d have though people with ms would have been high up the covid vaccine list

@Lframe , where is her pain and what type of pain is it, e.g. shooting, stabbing, throbbing, burning, etc?

@stumbler The worst pain is in her leg she says it’s a burning pain with pins and needles. The leg also goes into spasm. She was hospitalised with relapse and has had methylprednisolone for five days

@stumbler she has complained of it being numb also

@Lframe , the tizanidine should start to address the spasms, the carbamazepine should address the burning, numbness and pins and needles.

What dosages is she on?

Is she mobile at all? If so, keep her moving. Light, but moderate exercise is good.

@stumbler Tizanidine is currently 6mg morning and night and 2mg in the afternoon. The carbamazepine just started yesterday and is 100mg morning and night. She is a little mobile and does have the determination to get her strength back. She had a couple of good days last week and done too much so suffered for it. She will just have to learn what she can do and when, I guess it’s hard to work out at first how much you can and can’t do. 
I have read that the steroids reduce the time that the relapse lasts for. This may seem a stupid question but how do you know when the relapse has stopped?

@Lframe , the maximum dosage for Tizanidine is 36mg a day, so if the spasms don't subside, there's flexibility for your Doctor to increase the dose. Just beware that this is a muscle relaxant, so if the legs are weak, then too higher dose will exacerbate this problem.

Let's hope that the carbamazepine starts to dampen down the other problems. The usual dose to address nerve pain is  600mg to 800mg daily, taken as two doses. But you start slowly and build up over a matter of weeks.

So keep in regular contact with the Doctor to review the medication.

Relapses are caused by an inflammation(s) on the Central Nervous System (CNS). The Steroids primarily act as an anti-inflammatory. They will be working to reduce the inflammation and resolve any relapse symptoms over the following 6-8 weeks. But you do have to rest up to allow this recovery to happen.

Bear in mind that we are all different and can react differently.

P S I'm not medical in any way, shape or form. I've just had this MS lodger for 30 odd years.

@ stumbler thank you so much, you are so knowledgeable on this horrendous condition by I guess you’ve learnt a lot over 30 years, take care I’ll probably be asking you a lot more question in the days, weeks and months to come

hI, i don't think holland and barret is the best place, you need to buy 10% or over or it won't work

Is it possible to ever be pain free with ms? My mum is currently on oxycodone, amitriptyline, paracetamol and just started tizanidine in the last two weeks and just started carbamazepine today but is still really suffering with pain 

Pain