@DominicS

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DominicS

More Coronavirus (Covid-19) Advice re DMTs

The Cambridge neuroimmunology group led by Prof Coles has published downloadable guidance regarding DMTs here: https://t.co/kdrZTC1K5r?amp=1

makingameal

@makingameal

Thanks for sharing. Still feel unsure despite all the recent posts/comments on the Barts blog, if we should avoid public transport eg. The London Underground which is a germ hub! If on a DMt like Ocrevus. Hopefully this will become clearer soon. My MS nurse advised I avoid and work from home if possible - however, I don’t want to do that for months if it’s not needed..

DominicS

@DominicS

@makingameal - see the latest on Barts. I am on ocrelizumab too. After reading that I am far more relaxed. The nurse is doing as nurses often do - with the best intent - and that is opt for extreme caution in the face of ill-defined risk. It seems that B cell depletors like ocrelizumab are nowhere near as risk inducing as the T cell agonists. At this time there is a large part of using your skill and judgement. Common sense, PHE/CDC/WHO advice is all relevant. Masks are a waste of time.

ItsMewithMS

@ItsMewithMS

I'm thinking the typical mask that I see people wearing on the news is worse than nothing as I am always fiddling with it and adjusting it so bring my hands to my face way more than typical...I think it would just be too annoying and do nothing...but make 3M lots of money ;-0 but- I still have lot of their stock so I say everyone should buy one...but they are likely in crazy backorder

DominicS

@DominicS

In the UK you mean that you aren't stocked up with masks but own 3M shares - as in stocks and shares ;) - The masks, unless the type that seal to your face a'la a gas mask and are trained in their use, are apparently pretty useless and can induce a false sense of security. - @highlander and I have both been trained in mask use, albeit trained in a non-NHS approved manner. It involves walking in a circle in a small room full of CS gas, taking it off to give name rank and serial number whilst a Junior NCO in a mask tries to make you breathe in the CS. I have had better days.

makingameal

@makingameal

@dominics I am at Barts ha - so my nurse is there, but this was last week, I gather they’ve had time to assess it all now. It’s not hard for me to work from home, just not sure if it’s completely necessary. Avoiding the tube seems like a wise choice though personally as it’s massively crowded. I just would like more info on the behaviour modifications I guess. I suppose it might be worth just waiting it out for a week or two and then reassess. I find it hard to know if we are considered “the vulnerable” being on a drug like Ocrevus with MS, when all the public bodies mention vulnerable people with pre existing conditions..

DominicS

@DominicS

@makingameal The lead Neuro at Barts - Prof Giovannoni told me today (I interviewed him for Shift.ms) that they now feel that the Italian advice rather overreached itself. They are rowing back on it a bit. Ocrelizumab is now pretty ok. Gavin wrote this in his post today. I too am on ocrelizumab so I was greatly relieved.

ItsMewithMS

@ItsMewithMS

I live in "3M Territory" and have worked for them in the past...most recently until June of this last year. My cousin actually works in maintenance at the Aberdeen SD plant where many of the masks are made, at least the el-cheapo masks. Did you know they were initially made off a bra-cup mold? with a guy laughing and putting it on his face? from there a new product was born ;-0 that is how it is with many 3M products as we keep finding new ways to use a good idea...not that I support bras ;-0 or, I guess, I should rightly say they support me... Anyways - 3M offers a good discount for employees to buy stock so whenever I work there I tend to get a bit over invested in stock...with it's recent performance that is being re evaluated. Too bad the masks aren't enough of an influence in their 80,000 products or the stock would be ticking up ;-0 at least that would be positive!

Kristie_Lyne_Bonhomme

@Kristie_Lyne_Bonhomme

@dominics thank you for sending me in this direction with the information above, I still worry, but much less after reading the above documents. Hand hygiene is our friend, being a health care provider I know this through and through, just now with a suppressed immune system I am just more mindful.

rainbow9421

@rainbow9421

@dominics thanks for posting. That is really helpful. The only frustrating thing is that, unless I missed it (probable), it doesn’t cover what you should do if you have just had treatment. I finished my third round of lemtrada a month ago and currently have a lymphocyte count of 0.4.....not quite sure what I should be doing!! Don’t want to overreact but at the same time, worried!

DominicS

@DominicS

Trying v v hard not to catch it. I guess. Can't change the past :( Make sure that if anything happens you have made it very clear about your circumstances to the medics.