@Chazwick

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Chazwick

Blurred vision in Right Eye

So I'm in a difficult situation and I'm just wanting to know how seriously I should take this. I have RRMS and was put on Gilenya (Fingolimod) over a year ago now. I am currently in Finland on an Erasmus exchange and in my last week. Yesterday I suddenly had a slight blurriness in my right eye. It's been really sunny and I thought maybe I'd caught the sun in it but it is still there today it gets better if I close my eyes for a bit or have a brief nap but soon returns to being blurry. I am able to see fine, it's more offputting than restricting. Now I return to England on the 30th May and have my 3 monthly appointment on the 6th June, and I've read online that the blurred vision is something that happens to most people with RRMS and usually passes within a few weeks. I'm worried about going to hospital and missing my hours (currently in my final few months of studying to be a mental health nurse) and especially worried about going to hospital in Finland. Is this imperative enough that I should seek medical attention immediately or am I ok to wait 2 weeks to see my consultant? Thanks

Monica2015

@Monica2015

Hmmm, this is a slightly difficult question to answer, simply because of my own actions that I took during the course of 16 optic neuritis attacks, loss of vision in one eye for 6 months and double vision in addition. Namely, nothing! However, in retrospect was that a wise course of action to take, I would reflect, probably not, particularly the complete loss of vision episode. The norm is to receive a course of steroids for what is deemed to be a "disabling relapse". They will speed the rate of recovery but not the final outcome thereof. The positive news is that my eyes recovered fully after each relapse. However, there are many who were not so fortunate. Ultimately, the decision is as to whether you consider this to be sufficiently disabling to attend a foreign hospital etc. I sustained a head injury on holiday 2 years ago on my first night of a 2 week holiday abroad. It precipitated the most horrendous double vision and a relapse rendering me unable to walk (I had been climbing hills a week before!). The hotel dr obviously checked my Neuro functions as I asked them to, but despite much pressure, I declined the 4 hour trip to the hospital for an MRI and steroids as I was of the view that as I usually refuse them here, why would I do so when I had just reached my foreign destination with all the ensuing huge inconvenience and expense? Was that a sensible decision, I cannot say. I am not attempting to deter you from seeking aid at all, I hasten to add, I'm simply sharing my vast experience on ON and other sight issues with you. If I can assist further, pls PM or message me here. Good luck!

Stumbler

@Stumbler

Hi @chazwick and welcome. Have you suffered with any visual problems with your MS in the past? Optic Neuritis is a common problem with MS, https://www.mstrust.org.uk/a-z/optic-neuritis . It could be the start of a relapse, which suggests that a course of high dosage steroids are required. Alternatively, you need to rest up whilst you allow yourself to recover from this development. If you are involved in a high stress situation at present, this could be the cause.

Avengr13

@Avengr13

Hi @chazwick. I have had a few bouts of optic neuritis (which yours might be). I let my neurologist know and she immediately put me on iv steroids. That helps speed up recovery and limits damage. Within 4to 6 weeks, I was back in business with my vision seemingly intact. However to this day when any eye professional looks into the back of the eye, they are able to see the damage brought upon my by optic neuritis. I am not sure if it would have been worse if I ignored it or just the same. I believe it was the former. This was my experience. Please check with your neurologist to get an expert opinion.

cameron

@cameron

Can't you get hold of your UK MS nurse to chat it over? Or, get steroids from a GP over there without having to go to a hospital? As you're soon to be back home where you could have the MRI, the steroids could be the intermediate fix.

Monica2015

@Monica2015

I think it is wise to speak to your MS nurse if possible, but I would add that it is likely to resolve within 4-6 weeks of its own accord in any event! That has been my experience. When I request the back of my eye be examined by the opticians, to establish if it is pale or it demonstrates any evidence of accumulative damage from my numerous attacks, I have been advised that there is no such damage! I am not certain as to how I could have possibly been so fortunate, or indeed if this is the norm or abnormal. I'm simply advising re my own experience. This just reiterates how different we all are with the same condition. Maybe if we had some more info re your history especially re ON, it may be easier to advise further. I am of the view that you must trust your own instinct, with your own MS attacks history in mind, and take a view. Discuss it with professionals of course and make an informed decision. If you have further background info to share, it would be beneficial. Good luck!

Chazwick

@Chazwick

Thanks for the advice everyone, I decided to visit the hospital to be better safe than sorry. Was very lucky and got a doctor who is currently researching the links between MS and Macular Degeneration, jackpot! He did a thorough examination and said there does not appear to be any damage to the eye itself and basically said that with me going home in a week that it would be best that unless it gets significantly worse or I get double vision, to just wait until I got home and talk to my consultant. He said I should get my eyes checked regularly by an opthalmologist from now on as well. Thanks for all your advice.

Monica2015

@Monica2015

@chazwick , glad to hear all went well. I was hoping your experience would mirror mine and the eyes left intact. I agree wholeheartedly with his advice. Keep us posted upon the outcome on your return.