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Is shared decision-making in MS care dead?

This article by Prof. Gavin Giovannoni is all about shared decision-making in treating MS: https://gavingiovannoni.substack.com/p/is-shared-decision-making-dead He received a question from a person who was only offered three medicines for their MS, but they wanted to try two others. Prof. G argued that shared decision-making isn't always best. He writes that sometimes, it's too stressful for patients to handle all the choices by themselves. He gave an example of a patient who felt a huge relief when he offered to make the decision for her. I want to know what you think 👇

Who should take the lead in making MS healthcare decisions?

Total answers: 253

London, United Kingdom

I personally think it's up to the person with MS to weigh up the pros and cons of the medications and treatments and the very bad thing of side effects when I went on all the happy Ms drugs nobody told me about the side effects or anything they just expected me to take them without even asking I was like a zombie asleep in a wheelchair for over a year then I stopped taking all the big farmer meds over 10 15 years ago now and I feel so much better for not taking them and all those horrendous side effects that I suffered so I would agree making a decision with a healthcare professional is a good idea if they tell you about all the side effects and all the issues it can cause years down the road sorry if I've gone on a bit but I've got Ms lol


I agree with above, it should be up to the person with MS. MS has lots of treatments, no known cause and not fully understood. Some like to make the decision about treatment, and others are happy to let the consultant decide. Everyone approaches their treatment differently 🤷‍♀️. Good question!