Last reply 11 months ago
The wisdom of groups

I have had MS for 16+years. I am ok but I certainly can’t walk and talk, one or the other if you want a reply. I go to a MS physio group every week. The same people have turned up for years. The great thing is that they are people that understand and between us we have had the smorgasbord of available treatments in the UK mostly through our fantastic centre in London. The mental support is as beneficial as the exercise. We can have fun with each other in a way that we would find offensive from non-strickened folk. Any treatment questions ? Somebody will have had it and can help prepare you.
For me they are my very personal resource of friends who understand. We do say trite things to each other like ‘ keep going’ but behind that phrase we acknowledge the effort required.

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11 months ago

@cijh , there’s definitely strength in numbers. 😉

11 months ago

Good on you mate.
I’m very similar to you with the walkie talkie probs.
Question for you …how is this run? My local hospital gives you six sessions then you’re on your on your own at home to work of a sheet of instructions.
I’m glad it’s working out for you and your friends, long may it continue.

11 months ago

Yes that sounds typical, diagnose and run! I wish I’ d been told first off to keep as active as possible – use it or lose it philosophy. To find local groups perhaps start with the hospital physio as they know you. Our group is run through a branch of the local MS society. Just keep ringing and asking, someone will know. Good hunting

11 months ago


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