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stumbler
1 year ago

@nutshell88 , I think this is still in the trials stage and has not yet been approved for use anywhere.

The process is painfully slow, for practical reasons.


Anonymous
1 year ago

I was on it at the beginning during a study trial. It effected my breathing by decreasing the intake over the 2 years I was trialling it. CT scans showed white images on my lungs. 1 of Doctors recommended coming off it so I did. Wasn’t really doing anything to help my spms


nutshell88
1 year ago

@rotherhamdave thanks for sharing your feedback.
I’ll be on Gilenya for
But i didnt start gilenya yet still waiting for their call

It worth considering for helping reduce brain volume loss in spms or ppms but realistically it’s looking like ibudilast is going to be twice as good and has a known safety profile.

I wish the would run a trial of ibudilast with one of the other dmts.


nutshell88
1 year ago

I’ve never heard of ibudilast I’ll look for more information about it 😉
@https://shift.ms/members/californiadreamin/

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