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stumbler
9 months ago

@nutshell88 , I think this is still in the trials stage and has not yet been approved for use anywhere.

The process is painfully slow, for practical reasons.


rotherhamdave
9 months ago

I was on it at the beginning during a study trial. It effected my breathing by decreasing the intake over the 2 years I was trialling it. CT scans showed white images on my lungs. 1 of Doctors recommended coming off it so I did. Wasn’t really doing anything to help my spms


nutshell88
9 months ago

@rotherhamdave thanks for sharing your feedback.
I’ll be on Gilenya for
But i didnt start gilenya yet still waiting for their call


californiadreamin
9 months ago

It worth considering for helping reduce brain volume loss in spms or ppms but realistically it’s looking like ibudilast is going to be twice as good and has a known safety profile.

I wish the would run a trial of ibudilast with one of the other dmts.


nutshell88
9 months ago

I’ve never heard of ibudilast I’ll look for more information about it 😉
@https://shift.ms/members/californiadreamin/

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