Last reply 1 week ago
Scared and hurting

Crampy painful restless legs with painful knees also bad muscle spacisity in my back neck and quads. I know my neck has a lot to do with migraine s but nothing i can do . my knees hurt really bad my balance is off im scared to death no idea what im doing helllppp!!!#

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sarah_williams
1 week ago

What does muscle spacisity feel like?

I am not diagnosed but have a whole list of weird symptoms.

Feeling scared too. Appointment tomorrow. I have muscle tightness and spasms/twitching happening a lot… Nerve tingling/electric sensations in legs, feet, hands, arms. Sometimes pin prick sensations… Amongst others. The weirdest is the occasional electric shock sensation in my tongue. Desperate for answers. My body doesn’t feel right and feel very scared and alone too.

Have no answers for you but I’m with you.


clary
1 week ago

Hi, I can’t offer any medical advice. I advise you to get some treatment to combat your pains and sensations.
I hope you are able to get help from someone.

Unfortunately I can only offer words. My thoughts are with you and I hope they reach you across the internet.


itsmewithms
1 week ago

If these are new symptoms that have lasted more than 24 hours have you alerted your care team? if you are having an attack it may be able to be shut down quickly with the massive steroid push that can be ordered. Of course it needs to be confirmed as an active lesion through an MRI…

For on-going maintenance there are also things you can try from stretches/activity, supplements and prescriptions. For a strange numbness in my upper thigh last year I was prescribed Gabapentin for a bit and switched to Gralise which is the extended release version and worked better for me. Months after that issue resolved I was having fatigue after about 30 minutes of activity so my Neuro prescribed Modofinal but insurance said no and said to try Amantadine first. I didn’t notice any improvement in fatigue but no longer got leg spasms in the afternoon or bedtime.

In addition I make sure to stretch thoroughly for at least a half hour a day (several times through the day as well) and do some non-impact strengthening work. I take Mg and make sure I have some calcium. I also take fish oil, Hi Cap C and Vitamin D3. There is much we can do besides our DMT to be in the best shape we can be-

Good luck! you will see lots of hits if you use the search glass for supplements, diet or exercise-


vixen
1 week ago

Hello @cpandolfo55gmail-com, have you had an neuro appointments recently? Some gentle exercise would be useful and also, something like Amitriptyline would really help with your headaches….

Vixen,
I have not had a neuro appt in a while ive let my neuro and migraine care slip because ive been taking care of cardiac care so ive let everything else slip soo its been a while . im on topomax and Fiorcet and lyrica and baclofen at the moment.


stumbler
1 week ago

@cpandolfo55gmail-com , you need to understand a bit about pain to get the right treatment. The following might help :-

https://www.mstrust.org.uk/a-z/pain

You need to try and manage your worry/stress, as this makes everything worse.

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