Last reply 2 weeks ago
Nausea, stomach cramps

Hi all,

I had my second dose of ocrevus on Tuesday & since Thursday I’ve not felt quite right, feeling exhausted, nauseous & stomach cramps. Has anyone experienced this after this treatment? Do you know if there is any sort of link?

Thanks

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itsmewithms
2 weeks ago

When I put in Ocrevus into search/magnifying glass upper left I get a lot of responses but not if I combine it with cramps. I am due for my second infusion this week and had no cramps from the first round. Just a bit of a rash on my face and neck that they shut down with more benedryl. I think some people also react allergically to that…which is not as it is used to combat allergies! That is life with MS.

Try your nurse line or the Help like https://www.ocrevus.com/patient/support/ocrevus-connects.html


mich
2 weeks ago

@itsmewithms
Thank you for the response 🙂 I’ve contracted my ms nurse but she’s off on annual leave at the minute. I didn’t have any reaction to the last lot of ocrevus so thought it was odd that I’ve not felt well this time. Thanks again.


itsmewithms
2 weeks ago

I went through the Ocrevus site again looking for a direct number but just kept seeing notes to be in contact with your Neurologist. I would think that you would have been sent out with a care sheet that included a 24×7 care contact. I’m pretty sure I was. Have you tried the infusion center that you went to? mine always has an on-call nurse line-
https://www.facebook.com/ocrevus/app/36495350702/


mich
2 weeks ago

@itsmewithms I’ve not no, this is all fairly new to me as I was only diagnosed in March this year then went straight in for the first lot of treatment the following month. I’ve felt relatively healthy (touch wood) so not really had the need to be in contact with the ms team that much. The only contact details I have is my ms nurses who I saw after diagnosis & in between treatments. I’ve not had any info on what to do really if I’d got any problems.


itsmewithms
2 weeks ago

I know, we don’t tend to reach for information until we need it and then wish we knew more 😉 I was Dx in 2005 and really wasn’t much impacted for so many years but now am starting to notice more progression and that it is impacting my life. I was on Copaxone for 11 years and then to rebif for 4. Just now switching it up to Ocrevus.

Use the little search feature in upper left of this page and also you can try sites like the MS Society. I’ve learned quite a bit just poking around starting with pages like: https://www.healthline.com/health/multiple-sclerosis/what-ifs-after-diagnosis?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=multiplesclerosis&utm_content=2019-10-10&apid=29101565#takeaway


mich
2 weeks ago

Thank you so much 😊 will def have a look.

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