Last reply 2 months ago
Its been awhile :)

Hi Everyone. Hope everyone is okay
Do you get them days when you are just ‘nah not today’ cause I am having more of them days than ever now
Just feel like I cant win socially, work, studying, money and treatment for my MS. Currently I have to change treatment to Fingolimod. My two doctors haven’t passed each others notes yet but still waiting for confirmation on the go Fingolimod. I just feel like am losing cause once a month I have to travel for the treatment and I go once a month. Which means I lose a day wage and I cant do over time cause of my Ms. I juts want a break from all this just want to earn living but I cant.
Okay that’s my rant done
thanks guys <3 <3

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lori123
3 months ago

@sarah
I understand MS is so hard!! You are not the same and the things you use to do is now to hard.. I want to be my old self!! I miss not being able to work!! I want to make money!!!


stumbler
3 months ago

@sarah_graham , we all have days like that, so don’t beat yourself up about it. It’s OK to feel sorry for yourself, just try and not dwell on it for too long.

As far as work is concerned, your employer is legally obliged to accommodate “reasonable changes” to assist you in retaining your job. This can include allowing time off for related hospital visits.


sarah_graham
2 months ago

@lori123 I am so happy that am not the only one. Cause I worked so hard to get the full time hours and now they are gone. And I had plans with photography and saving up for my 1st house (with wide stair case so I can have a stair lift on those cold winter nights, hey a girl can dream 😉 ) I need to find something that can help me raise money so I can secure my future.


sarah_graham
2 months ago

@stumbler My job have been brilliant. They have made soo many changes for me and supported me through it all. its just the reminders that I cant be on the same level I use to be. Just need time but I want a future that secure and I have me freedom back

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