Last reply 1 month ago
I'm new here but not to MS

I saw an ad for this site and wanted to try it..I feel so isolated and alone most of the time except for my animals. I was dxd in 2008 and now am on disability, have SPMS and seldom do anything. No friends in the area, live alone. Looking for people that understand to be friends with!

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beshrp1
2 months ago

@rebecca_lynn_pritchett
Hey gurl!! I’m new as well!! But not to ms. I’m grateful for the meds they have now….
I was diagnosed in ‘93. I just went on disability. Def a life changer. I’m learning to enjoy every day.
I’m in 🇨🇦 so -3C here now, but snowstorm on way for weekend, AGAIN! Lol so prob -42•c and 60cm of snow!😉 Nice to chat! Take care, all the best!


geee_h
2 months ago

@rebecca_lynn_pritchett

Hi .
Your in the right place.
Also think about joining a group activity that’s not particularly Ms focused, art classes, swimming club that sort of thing.
Don’t shy away from being a part of the regular world, your still a member of that as well 😶


jjohnson84
1 month ago

Yes you are still apart of the regular world we all are…And will always be.. I was diagnosed in Feb 07.. Had for 11 years now.. Never give up because that’s not the way to be… Just be strong MS strong because that’s what we all are…. We have MS but the MS Doesnt have us and it never will… My kids is what makes me strong everyday even when I dont wanna be… God Bless all of you.. You all are all a blessing..


jjohnson84
1 month ago

I have SPMS as well and I am taking Orcevus and it’s been good so far.. Yes you are still apart of the regular world we all are…And will always be.. I was diagnosed in Feb 07.. Had for 11 years now.. Never give up because that’s not the way to be… Just be strong MS strong because that’s what we all are…. We have MS but the MS Doesnt have us and it never will… My kids is what makes me strong everyday even when I dont wanna be… God Bless all of you.. You all are all a blessing..


lilyc
1 month ago

@rebecca_lynn_pritchett
I live in Wisconsin. Undertand feeling alone, no friends in area and living with SPMS. I am also on disablilty and take no DMTs. Affording Ocrevus? Medicare only pays 80% unless you can afford all the MRI’s & the increasing cost of therapies. I also understand about animals. I saw an ad for this site & decided to try it. I only communicate (private) setting w/one other person here. I had been looking for yrs to find some place or some one else to understand what this disease is. Not so much the disease as the loneliness it eventually created for me. I don’t know if you are able to get outside w/o wheelchair or assisstance. I have been to Kentucky. Had many relatives there. I have requested you as a friend although I am old enough to be your Mom. (Age doesn’t matter.) Hope to hear from you.

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