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@DawsonMcWatch 

Last reply

DawsonMcWatch

Help

I’m on ocrevus it’s been about 5 or 6 weeks since my second half has been givin an my symptoms are still up and runnning my double vision seems worst if anything I’m super scared an have no idea what to do... I juss wanna through in the towel:(
7
@DawsonMcWatch
@DawsonMcWatch
 

Someone please help I feel so alone right now

@ItsMewithMS
@ItsMewithMS
 

So sorry- sounds like things are a mess for you right now. My mom passed away (early onset Parkinson's) but I always think back to the bedtime story/book of my daughters - when Alexander had a bad day - take a read https://www.youtube.com/watch?v=w6HhKlpp7ok Sometimes I think I am Alexander...then I think about it and all the wonderful things I've had in my life and all the wonderful things I still have...even though I also have MS. I remember reading this to my daughter when she was little and in a sulk and tell her in my best mom voice "My mom always told me there would be days like this"...There are days like that...and that makes me appreciate the other days and all the wonderful things in my life. Hope tomorrow is better. I've been on Copaxone and Rebif in the 15 years since I've been diagnosed. In that time I've had a series of relapses that were quickly managed with massive doses of IV Predinisone. Now I am having issues but as there is no visible inflammation in an MRI (ie no active lesion) that isn't an option. It may be a nerve issue surfacing from the hip replacement I had to years ago so we are trying gabapentin and today seems better. I don't know what type of MS you have but if it is RRMS and there is an active lesion ask if predisone is an option. It always helped me. Whenever a relapse impacted my vision, speech or gait my Neuro took it pretty seriously and acted quickly. Hopefully yours does as well or you have more options in Neuros. And I hope tomorrow is a better day ;-)