@norfolkgal 

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norfolkgal

Hair loss

My hair is getting thin. Every time I shower I have to clear the plug hole for all the water to drain & the same every time I brush my hair, brush needs clearing. That's not including the few over the course of the day. I think it's since I started Gilenya last December, certainly getting more noticeable how much I have to clear. I asked others & some people told me they're not even on dmd's & many agreed they think it's just ME I've tried recommended shampoo & conditioner but now used 4/5 Times & no better. Anyone found a way to help? The way my hairs falling out I'm sure I'll be bald soon.
@GShine

I do not think it has to do with DMD. I have PPMS and therefor there are no DMD's! I lose a fist full of hair with every shower. On MS Facebook sites, i have seen this same question many times. I think it is autoimmune symptom. How do symptoms get added to the MS description? I think this one should. GShine

@Caterpillar

There are many reasons for hair loss... from thyroid problems to natural causes ( there are periods when more hairs are lost because the hair strands reach the end of their life at the same time - and then new ones come in the same place). Gilenya has hair loss as one of its side effects, but it could also be some other problem - for example a fungal infection ( some people in the Gilenya trials got it - and infections are perfectly treatable). Talk to your GP. I don't know how long a referral to skin doctors would take, that is usually a longer affair but maybe something could/should be done while you wait.