@Sdkpi 

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Sdkpi

First thoughts!

I just joined yesterday and I just wanna say how absolutely amazing this site is. I've been fairly unphased by my recent diagnosis, probably because I've known there's something not quite right with me for a while so when I found out it's something that isn't terminal like cancer or motor neuron disease I was at peace. My only real concern was not having anyone around me who can understand my illness and future (probable) struggles. I'm a very big empath and part of that is that I also seek to be understood and one of the biggest pains in my life is when people don't understand how I feel. So, understandably the thought of people maybe not understanding that I am /suffering/ despite looking like a very young fit girl was daunting. My lovely LOVELY MS nurse told me to get onto this when I was talking to her about my anxiety over this when she called me yesterday morning. I'm sure I would have discovered this at some point anyway but I'm so happy I was told about it so quickly. Also, as a very typical "young person", I'm a social media junkie and I have my entire like splayed out on Twitter and Instagram so it's nice to have a dedicated space for me to talk to people, ask questions and learn from. Thank you for all the lovely comments on my first post <3
@Henrietta

@sdkpi It’s a great site isn’t it? I was diagnosed in late July - over the phone - and pretty much all my MS consultant said to was read up on Aubagio and Tecfidera and email his assistant with my decision! I then got a letter a week later telling me I have a phone appointment with an MS nurse - in October (bit envious you’ve already spoken to yours). So this site has been really helpful, as have the Dr Boster vids on YouTube. Anyway hello and I’m loving your upbeat unfazed attitude...

@Stumbler

@sdkpi , there's a lack of general knowledge out there about this "invisible" condition. Hence the problem........