Last reply 8 months ago
Finally got to see my MRI scans, HURRAHH

Had an appointment with my MS Nurse earlier this afternoon, for the usual “So, how ya getting on with it…” talk.

I did see my mri scans at last, taken back in 2017, first time seeing them and to be honest, a little disappointed, was expecting them to look like someone had gone crazy with the Tipex but no, mine are multiple small to smallish lesions all dotted around the Cerebellum / Cerebellar. I asked how many and all I got was..,. “a lot”

Good finally getting to see them, I guess.

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Anonymous
8 months ago

lol last time i saw them was 2014

when i got atrophy

i panicked silently

cried at night when i was fully aware of how far it can go
lol

i was in scotland but oh well i asked them to never show me such things

it is terrifying
reminds me if first lesion they showed me 2004 they never said i have ms i was young i said it will recover next year they said hehe na it will continue always and gets even more


Anonymous
8 months ago

I wish I could get an MRI but they won’t do one. Complained to my unsympathetic nurse who just told me to request one. Been there, done that, going round in circles. Looked into cost privately but way out of my league. So, nine months till next Neuro Rehab appointment. Will try again then. The only test they ever did to diagnose me was hammer on knees. What century am I living in?


highlander
8 months ago

@silvana_hansen
Where in the UK do you live and when did you get DX a hammer to the knee is probably 18th century.
Even in the 20th century things have moved on a bit further…


Anonymous
8 months ago

@highlander
I live in Newbury Berkshire. A fairly prosperous area. Got the hammer DX in 2002. Seems like the local Neurologist sees it as his personal mission to save the NHS money. I have heard similar stories from a couple of fellow MSers and they are now wheelchair users.


scramblelina
8 months ago

@silvana_hansen you have the right to change neurologists if you aren’t happy with the one you have. I would recommend doing a little research and asking you GP for a referral, I’ve done it myself and it’s pretty simple.
https://www.citizensadvice.org.uk/health/nhs-healthcare/nhs-patients-rights/#h-seeing-a-consultant


Anonymous
8 months ago

@scramblelina Thanks, I didn’t know that was an option. Will definitely try that. Today I did send a strongly worded email to PALS at the hospital so hoping to get some sort of reaction from them. Will check out the link you sent me.

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