Last reply 6 days ago
Awaiting formal diagnosis

Hello, I was wondering how long it takes normally to see the MS consultant?

I have seen the neurologist who has told me all my results are consistent with MS and that I meet the criteria for MS but he has referred me to an MS consultant at the QE in Birmingham. I was just wondering how long it takes for the appointment?

Thanks in advance for any help you can provide.

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lukezni
1 week ago

Well for me I seen my neurologist about 3-4 times before I started treatment. I didn’t actually see my MS consultant until a week after my second infusion of ocrevus. So I’ve seen him once in a year since diagnosis


caitlin_leeds
1 week ago

In the US we don’t have MS consults…. my neurologist was the one to diagnose me. Don’t mean to pull from your question but what exactly does an MS consultant do for you guys in the UK??


tallritchie
1 week ago

@catalin_leeds I think she is referring to a Neurologist who specialises in MS as well as other neurological conditions… I had my first relapse two years ago and the amount of info was difficult to compute

I was told by the hospital that they thought I had ms so would need an MRI. The waiting list was 8 months. My mum luckily paid for me to go see a private neurologist. I only had to pay for the consultation. Within 2 weeks I was diagnosed. So if you can I’d try that route. Been diagnosed 6 year ago at 30 but I’ve had since 19. I started treatment but this only reduces relapse 30-50% andbecause it lowers the immune system it leaves you open to viruses which hit you like a truck! I now don’t have treatment. Although I have been having trouble with it since March and had to quit my job. Good luck !


tallritchie
1 week ago

same here @rachel_bradderz_child the appointment cost £200, cost of 40 pints = result

@tallritchie I think money was £160, he was an ms specialist and because he referred me I didn’t have to pay for MRI. Well worth it.

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