@ruger2012

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ruger2012

mri results opinions

mri results could anybody offer there thoughts of this mri could it be safe to say i dont have ms Brain a tiny T2/FLAIR hyper intense white matter lesion bordering on the anterior horn of the left ventricle is noted, which was not visible on prevous exam. A tiny white matter lesion in the semi oval centre on the left side is appears unchanged compared with 2011. both are non specific in the appearances: neither shows patholigic enhancement or restriction of diffusion. No further white matter lesions are identified in supratentorial brain conclusion two tiny white matter lesions are identified in the left hemisphere,one of which is new compared with 2011. the appearance of the lesions are non specific, not definitely demyelinating plaques.in any case no active lesions are identified. no posterior fossa or cervical cord abnormalities

adar

@adar

Demyelinating plaques are a sign of MS. That's how must of us get diagnosed.

Stumbler

@Stumbler

Hi @ruger2012 snd welcome. It's not safe to say anything about what this means. Brain lesions can be acquired as part of the normal process. Apart from that, it's not really safe either for forum members to try and interpret MRI results. Consultants are paid a lot of money, after a lot of training, to do this. But, MRIs only show so much information. It may be what is not displayed...... MRIs are only part of the diagnostic process, which also involves your clinical history and, if necessary, other tests. What are the symptoms that lead to you being in a scanner?

ruger2012

@ruger2012

Poor balance poor coordination arms/legs sensory disturbance of arms/legs blurry/double vision slurred speech this would be my 3rd possible flare up, I am just will the Neuro be likely to just discharge me now as mri doesn't appear to be conclusive of ms but as you say I know I need to the consultant to interpret it's 12 weeks since I had the mri and no sign of an appointment yet thanks for your input

arknat

@arknat

Hi @ruger2012, Thats a hard one ... Your MRI/radiologist interpretation does not seem to have any evidence of demyelinating plaques which is the hallmark of multiple sclerosis itself and yet you do have many symptoms of the disease itself. My MRI taken immediately after an episode of ON confirmed MS immediately through demyelinating plaques (although there was no enhancement or active lesions) in the scan. And ON was the only clinical symptom for me at that time. A second opinion from a radiologist and a neuro as you say will be the way to go. Getting on a DMT after confirmation will be helpful to prevent further/any damages. Good luck with diagnosis ...

ruger2012

@ruger2012

I know this is going on 6 years I think il be back to square one again with this mri. I have sent my mri images and report of to a medical centre for another opinion so I might know more when I hear back from them

Stumbler

@Stumbler

@ruger2012 , that's the problem with our NHS, these things all take time. This is especially true for MS, which is notoriously difficult to diagnose. MS symptoms also present in various other conditions. These all have to be checked and eliminated. It becomes a case of trying to locate the pieces of this jigsaw, to enable the full picture to be seen. Neurologists, in particular, seem to have a heavy workload, leading to these long waiting times for an appointment. Then you factor in the complexities of their chosen speciality, then a diagnosis can take some time. All we can do is try and "help" the process along, by contacting the Neuro's secretary, to confirm that you haven't got lost in the process. Offering to fill in for a cancellation at short notice can expedite matters. Alternatively, you could consider going private, to get a diagnosis, then switching back to the NHS list. This is obviously subject to your financial circumstances

ruger2012

@ruger2012

Yes I know when I was reffered in March I was told it could be 18 months to see a neuro in my area so I did see an ms specialist privately who thought I do have ms so he referred me to his nhs clinic for an mri and said he will examine me at his nhs clinic but unfortunately the consultant has been sick ever since and the hospital told me to go back to my gp to be reffered again the whole thing is a disaster I could be waiting months for a follow up after the mri I only got the results as I paid for a copy. I would have went private again but I've been unable to work the last 6 months so il will have to wait for the good old nhs

Stumbler

@Stumbler

@ruger2012 , just keep on their case, it's "the squeaky wheel that gets the oil"! :wink:

JimS

@JimS

Do your symptoms on your arm and legs occur on one side mostly or on both sides equally? In my case they are more on one side than on both sides. I think this is generally true of most MS people, but nothing is true for everyone with MS. Are your symptoms worse in hot weather? Like July and August of this year.

JimS

@JimS

Do your symptoms on your arm and legs occur on one side mostly or on both sides equally? In my case they are more on one side than on both sides. I think this is generally true of most MS people, but nothing is true for everyone with MS. Are your symptoms worse in hot weather? Like July and August of this year.

cammo

@cammo

You could always get a spinal fluid test to confirm... there is a new one which was released a few months ago. I suggested doing one to my neuro (as it can confirm progressive vs RRMS) and he said it was just another diagnostic tool like an MRI and that I definitely have RRMS (Brain has a shotgun scattering of lesions) so no need to take a spinal.

Meprudie

@Meprudie

I totally understand your situation. MRI - suggestive of MS but not conclusive. Symptoms for years - a couple of different neuro's, even the better one wouldn't return my calls after he left a message on my phone saying the spinal tap didn't show inflammation of the brain which is what he was looking for, but throughout the rest of the body. 3 weeks I was leaving messages and asking him for a 'please explain why you have asked for more bloods after the spinal tap'. and no return call - and he was meant to be one of the best MS doctors in Melbourne (Australia). 4 weeks later and my follow up appointment after spinal tap - no apology, no acknowledgement that I had called, emailed etc. He just said that he was going to have to diagnose MS, even though he was doing it kicking and screaming, because everything else had been ruled out, but he also wanted me to see a hematologist about the abnormal spinal tap results - they indicated a blood cancer but everything else he did to confirm the blood cancer came back negative. Here are the first of your MS drugs to try, here are your blood test requests for the next 3 months, he would call if there was a problem - see you in 4 months. So despite a diagnosis I still feel like a fraud who can't function properly. All of our MS or possible MS journey's suck - I really hope that you have some great family and friends support around you as you tackle the world of doctors and medical support systems.

ruger2012

@ruger2012

The sensory problems is in both legs but the likes of tremors and weakness is both sides also but more severe on my left side, so far I have had 2 mri and range of bloodwork. definitely affected by heat makes my vision blurry and effects my tremors, never had a spinal tap it was mentioned in 2011 but once the mri was clear I was diagnosed with essential tremor instead but I have never heard of it before and I was starting to feel better so I just accepted the diagnosis but there's a lot of symptoms that can't be explained by it, I have had a (suspected ms) relapse the last 3 years in a row at the same time of year I think it's the increase in hot whether sets me off