@hayleyc85 

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hayleyc85

Itching itching itching

Hi guys!!! This would be easier to describe with pics but here goes. This months tysabri has been postponed after i explained to my neuro the below sequence of events 1 week after infusion. Blistering in between my toes appeared. Very itchy and sore, they look blue at times and red others, like iv got frost bite. They change daily and had burst when i saw neuro so he wants this to heal before next infusion. Was given anti funal cream for this when it first appeared. Its done nothing. My feet dont even absorb the cream Spots/scabs on my chest and hairline on my head. One doc said shingles and one said impitigo. Anyway was horrendous to look at and luckily antibiotics worked and its clearing up now Was due my infusion on thurs at which point i had had itchy hands and feet for about a week prior but couldnt see anything. Noticied now little white raised spots that look like nettle stings? My hands, inbetween my fingers, ankles under my feet and toes now have been itching comstantly for days. Tried antihistamines creams and nothing works. Could this be the tysabri How do i stop it Do i now have to choose a lifetime of unbareable itching or stopping my treatment? Itching keeps me awake and has me on the edge of shouting at anyone who dares speak to me. Would seeing a dermotologist help? I can go see one privately. Thank you
@Stumbler

@hayleyc85 , itching and hives are documented as a side-effect of Tysabri. Googling "Tysabri and itching" finds many tales. There are some suggestions that taking an anti-histamine prior to infusion might help. It might also be worth trying to have a word with the infusion nurses, who will probably be more clued up about this issue.

@hayleyc85

I saw them all on thursday and they just didnt say or do anything and neither did my neuro apart from postpone it. Is there something prior to the infusion they can give me via a drip?