Need an outlet so here it is :')
I had my son in February and I was told during my pregnancy that I was high risk of relapsing in the first 3 months Post partum. Ofcourse my body decided to have that relapse in the April. I was on steroids and finished the, then had to have an MRI. Unfortunately my MS was still active after the steroid treatment.Which now means I have to go on a DMT.
The ones suggested by my neuro is Kesimpta and Ocrevus.
I'm not going to lie, I'm absolutely petrified of the thought of this condition again ruling my life and the thought of treatments. I have tried reducing my intake of medications and this is just daunting.
I know it easier to be like oh well the DMT would reduce the chance of relapsing again, I'm well aware but at the same time I'm thinking my relapse only happened because of the high risk relapse rate after pregnancy. Obviously is isn't certan that it was the post partum high risk situation. It could have happened either way. But yeah it's got me undecided about what to do.
I would like to have another child in the future, near future because I'm 30+ but I can't take the copaxone shots multiple times a week because it really broke me down having to do that.
It's really triggering my anxiety all of it. My tourettes has been full blown because of it, to the point it's hurting :/
If anyone has any experience of Kesimpta or ocrevus and starting families or pregnancy. I would much appreciate the words of wisdom.
Personally I wouldn’t start any meds until after I had the children I wanted but that’s me, there’s no knowing what effects could be passed onto your child I just don’t trust it. I’m very into natural healing and no meds though. One day I might have to but I won’t do DMTs until absolutely necessary. I’m sorry your going through this. I didn’t have a relapse after my last baby, so there’s hope for when you have more, it doesn’t always happen.
Medications aren’t just about reducing your relapse rate, they’re also about reducing your disability accumulation. And one way to think about it is that your children deserve a mother who can play and run with them. Statistically, DMDs are your best chance of not letting MS “run (your) life.” The recent data on ocrelizumab and pregnancy is promising. If you look at the recent ECTRIMS conference, there was no difference in pregnancy outcome between the exposed and non exposed groups. Not sure what the data is on breastfeeding but the benefit of OCREVUS is that while it is typically given every six months, it’s effects last much longer so you could have an infusion, happen to get pregnant then not have another until after you’d delivered. Reducing your risk of post partum relapse. Good luck with whatever you decide.