@ahorn43

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ahorn43

Numbness

I recently got diagnosed with MS...Does the numbness in your legs ever go away?

ItsMewithMS

@ItsMewithMS

MS is a disease with many different symptoms that can be different for everyone. There are several different types of MS and on your initial diagnosis the Dr may not know exactly where you are. Most initial diagnosis are either CIS (Clinically Isolated Syndrome) Where you just have one symptom- once and then it does or at least mostly does go away: https://www.nationalmssociety.org/Symptoms-Diagnosis/Clinically-Isolated-Syndrome-(CIS) The other most likely type of MS would be RRMS, relapsing remitting MS where you have a symptom, it goes away or mostly goes away https://www.nationalmssociety.org/What-is-MS/Types-of-MS/Relapsing-remitting-MS Hopefully you have found a good neurologist that you can have a really good conversation with. There is a good article for starter questions- https://www.healthline.com/health/multiple-sclerosis/what-ifs-after-diagnosis?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=multiplesclerosis&utm_content=2019-10-10&apid=29101565#takeaway There is also a little magnifying glass in the upper left that you can use to search. Welcome and take a look around. This group is a great place to ask questions-

ItsMewithMS

@ItsMewithMS

If you do have RRMS in the US they often prescribe a high dose of steroids (prednisone) that works very well for some and awful for others...search that using the magnifying glass. It always worked great for me and symptoms would go away quickly (within a day or two). Not sure where your numbness is and sometimes everything can't be blamed on MS. Something was impinging on my LFCN nerve causing the top of my thigh to be numb, Some nerve gliding, time and PT and that is resolved https://www.practicalpainmanagement.com/pain/neuropathic/meralgia-paresthetica-common-cause-thigh-pain It is good to look at any pain or issue you are having to be certain if it is caused by MS or some other cause that can be resolved.

ahorn43

@ahorn43

I got the prednisone but they don't seem to be working and keeping me constipated...OMG what can I do for constipation? I'm so lost right now

Highlander

@Highlander

@ahorn43 Loads of fruit juice and fibre.... Works wonders for me.

Highlander

@Highlander

@ahorn43 Some more homework for you. https://www.mstrust.org.uk/a-z/constipation

ItsMewithMS

@ItsMewithMS

Not sure why but when I started taking Gabapentin (then changed to Gralise) my constipation improved. I think that shows that it is due to my MS...I'm sure diet changes also help to the extent that it can

Mlgilber1

@Mlgilber1

My legs were numb and tingly for a couple years. It didn’t get better till I got on treatment for my MS. Miralax helped with the constipations from meds. It wouldn’t really matter how much fiber I ate. Or probiotics help. Gabapentin never did anything to help with the pins and needles or numbness in my legs and I was on 3600mg for over a year. I take lyrica for nerve pain and it helps more than the gabapentin did.

Stumbler

@Stumbler

@ahorn43 , how long ago did you receive the Steroids? They tend to help your body recover over the ensuing 6-8 weeks. But you must rest up to allow this recovery to happen.

ahorn43

@ahorn43

@stumbler I've only been on them for a week

ahorn43

@ahorn43

@highlander Thanks for that homework...I needed that!

Stumbler

@Stumbler

@ahorn43 , what dose are you on? The usual dose to treat a relapse is 500mg-1Gm per day for 3-5 days. Anything less is not worth taking!

ahorn43

@ahorn43

@stumbler I think there only 10 mg...started taking 5 for 3 days then 4 for 3 days and so forth! I'm on my 1st day of taking 3 a day

Stumbler

@Stumbler

@ahorn43 , you need to check exactly what dose you're taking. And, thne refer to this article :- https://www.mstrust.org.uk/a-z/steroids-methylprednisolone

ItsMewithMS

@ItsMewithMS

I have no idea how much I was given but this treatment sounds like what I got "The most common MS flare treatment is 1 gram of intravenous (IV) methylprednisolone (Solu-Medrol) daily for 3 to 5 days." https://www.webmd.com/multiple-sclerosis/treating-iv-steroids#1 From the MS society https://www.nationalmssociety.org/For-Professionals/Clinical-Care/Managing-MS/Relapse-Management Typical dosages https://www.medscape.com/answers/332483-13721/what-is-the-typical-dosage-of-corticosteroids-in-the-treatment-of-giant-cell-arteritis-gca-temporal-arteritis

Mlgilber1

@Mlgilber1

I’m surprised your doctor didn’t order steroid infusions which is what’s normally given. I remember once I called the on call doctor and he gave me a pack of oral steroids and they were 4mg... Finally, my MS nurse sent me for 3 days of IV steroids.

Ellen_Margaret

@Ellen_Margaret

My numbness started to get better after about a month and I was back to nearly normal after 3 months. BUT. Everyone's MS is different, there are no guarantees of anything. You might get better in two more days. You might not see improvement at all. Likelihood is something in between. Steroids will speed things up. Take care of yourself. Eat well, stop smoking if you do, and meditate. Stress makes MS worse, and having MS is stressful.

world25

@world25

@ahorn43 this was my first symptom and I remember feeling so fed up! But mine did eventually go away. It took about 1-2 months I would say. Although it hard try and stay positive, it’s a horrible feeling but you will defiantly get better. I was given some amitrypline as I suffered with a burning pain and tremors in my leg after a while and that seemed to sort everything out. Might be worth calling your MS nurse or calling the MS helpline they could advise you on what to do 😊

Lightning87

@Lightning87

Hey! I have had a numb outside of my left hand for about two years now. I suppose I have got used to it as the new normal now. Annoying as it is! Hopefully your numbness will die down over time, I think my hand has got better but it’s still there in some form.

Fiona_Sheikh

@Fiona_Sheikh

My left leg has been numb now for 3 months and no sign of it leaving. Tbh I manage with it. Fatigue gets me more