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MS fatigue - What's it like for you?

What does MS fatigue feel like for you? I’m still new to the MS dance and still getting used to the dance steps, so I’m still trying to figure out what is or isn’t related to MS. For the past few days I’ve been feeling tired and seem to wake up tired, even after having (seemingly) slept all night. Today has been especially difficult and I’m having a hard time getting through the day. I feel sluggish and my head is really heavy. I feel sleepy without really being sleepy (if that makes sense). Normally, I’d think I’m just coming down with something, but I don’t seem to have anything else indicating a cold or a flu. I’m now wondering if it could be just general MS fatigue. I’ve also noticed that my Lhermitte’s sign (buzzing and tingling in my tailbone area when I bend my neck forward) has been coming back now and then, after having completely disappeared for about a month. Any thoughts?

@lizp , that does sound like MS Fatigue. There's some information on it here, https://www.mstrust.org.uk/a-z/fatigue . Is it getting hotter where you are? Heat could be a factor as well, as fatigue can be adversely affected when your body temperature increases. See Uhthoff's phenomenon , https://www.mstrust.org.uk/a-z/uhthoffs-phenomenon . I wish I could suggest a magic pill to tackle this fatigue. You could try talking to your Doctor about Amantadine or Modafinil , which may help.


You have describe how I feel when I have fatigue, fortunately I usually only have it for a day or two. I usually don't try to accomplish anything that day, I am lucky if I get my clothes changed and something set out for dinner before my husband gets off work. Potter