@Diva40

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Diva40

Gilenya

Hi has anyone had issues getting Gilenya ? Only have 10 left!!!! In touch with Lloyd’s pharmacy.....

Stumbler

@Stumbler

@diva40 , all pharmacies are probably being affected by the stockpiling morons. But, it's wise to find out what's going on. If you can't get a definite answer, you could always put out a shout on here to see if anyone local to you can lend you some.

DominicS

@DominicS

@diva40 , this is something we talked about in the latest video though I can't remember if it made the edit. You should get onto the supplier (poss your MS Nurse that handles this?) asap. Do let us know how you got on.

katfight

@katfight

@diva40 Lloyds in general have been rubbish to me, left me for 2 weeks without meds, I honestly had a breakdown and said the stress of this is making me feel so ill I just need to get my medication. They told me to go to the hospital if I felt ill and left me for almost another week without meds, then I had a relapse.. so with the world in chaos I doubt Lloyds are gonna be in any rush but fingers crossed they will come up tops for you. Preferred the last company evolution. Good luck

Diva40

@Diva40

@katfight Meant to be getting a delivery on Thursday, fingers crossed

StrictlySoca

@StrictlySoca

I am freaking out too as I don’t have a two week cushion extra as they did not get on my delivery for the past 3 months I have had to keep phoning. Going to phone now.

StrictlySoca

@StrictlySoca

When I rang last week the message said don’t phone we are on it but now I’m down to last 2 weeks again

StrictlySoca

@StrictlySoca

Just given them a panic ring and they are saying only ring if you are due to run out in next 5 days. That’s going to be difficult. Already worried about catheters now this.

StrictlySoca

@StrictlySoca

It’s this daft centralised system for NHS England only one pharmacy is doing it. I am now breathing and letting it go 🧘🙏🏼🤪

StrictlySoca

@StrictlySoca

Ok so much for the mindful response just freaked out and rung them got two deliveries booked in so I now have a two week’s emergency supply going forward. 🙏🏼😀

bosh

@bosh

@diva40. Did your prescription arrive yesterday?

Diva40

@Diva40

Got it today. I called and said I only had 2 left and they organised ASAP!!! Thanks for asking.

bosh

@bosh

@diva. That's great. Spent hours last week chasing prescription (not MS) for my mum from Lloyds, so was interested and relieved to see how you got on.