Feeling lonely with MS
I've been swimming down that river called denial.
I was diagnosed in March.
And not coping very well.
Only my boss and a work bestie knows of my diagnosis.
My family don't check in on me since they were told, my two friends i do have don't even ask about it anymore.
My partner doesn't seem to ask either. No one around me understands what my body is doing on a daily, why when I get to cold I walk like a toddler. When I haven't slept enough I find my balance is all over the place.
I just can't believe this has happened to me I have no idea what to do with myself?!
I just feel alone.
I’m so sorry, it’s such a tough thing to have to accept. I’m finding that not focusing on it as much as humanly possible is helping me a ton. Don’t try to talk about it, live your life, do what makes you happy. Your people love you, they probably just assume you don’t want to talk about it, if you haven’t voiced that to anyone. You are in charge of your own happiness and I feel like making MS the focus of your life makes it worse. Try to find the positive and on shit days where you feel terrible give yourself grace, ask for help when you need it. Idk if this will help you but just know all of us have tough days, I have been diagnosed for almost 3 years and I still feel like I’m in denial. If you really want certain people to understand you can ask them to research things but none of them will ever be able to understand or feel what your feeling so you need to find peace with yourself more than anything and don’t look to others.
Im only diagnosed since April this year myself and it's been a learning curve and at times u do get frustrated with it. Like you said no one really talks about it or understands it but just take ur time take little breaks and don't push urself to try do more than ur able