Tecfidera
Hi all,
Not been on here for a while but....seen a new neuro who may recommend putting me on Tecfidera soon. I was on Copaxone for 18 months but it wasn't seeing any benefits so came off it - near said that was a good thing. Been on nothing for a further 18 months and probably gone downhill a bit.
Just really want to know the good, the bad and the ugly on Tecfidera, please.
I won't yet start a conversation on stem cell transplants....but that is in the back of my mind.
Thank you in advance!
A
Hi Beanie , I have been on rebif and have been told to try tecfidera. Hope to start by July as all things take time. I know it has some nasty side effects that only should last a couple of weeks or so. Some of the side effects are tummy problems,nausea vomiting and get this anorexia was mentioned by my consultant. That made me look up as few pounds heavier that I want to be since being diagnosed a year ago. I think a healthy diet helps and any med you take will have complications to start but they generally ease with time. Not all meds suit every body but the meds have stopped more leasions so that is the benefit.Take the positive route for you and do your homework as like me they expect you to make the choice. They think that tecfidera is better suited to some people than the interferon.
Thanks weenywoo22! I'm seriously liking the anorexia bit as I'm big at the moment! (No offence at all intended to any sufferers - shocking disease). There's a bit of me that is anti-DMDs per se - no-one knows what causes MS and they sure don't know how to cure it yet - so I'm trying to take the positives. I can't take interferon, so decisions are fewer for me anyway which is probably a good thing.