Last reply 2 days ago
Working full time.

Anyone else who works full time hours ever find that people at work (mainly higher ups) really dont understand what it can be like doing that with MS?

I know they can’t KNOW but like have they bothered to even educate themselves even a little on what it’s like working with the condition, when its implied they have.

I get its invisible to them and on the surface all appears fine so the only thing you can do is try to explain with words.

Just a little rant, can’t just be me anyways. Hope everyone is getting on as good as they can

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vixen
1 week ago

Hello @drummondbass. Not sure what you do for work, but an invaluable thing to do is to ask for an Occupational Health Assessment. This will be good for you, but also, it introduces employers to the world of support and understanding for people with a disability. It doesn’t mean that you’re not able to cope with work. In my opinion, it is the greatest form of protection, apart from a union, that an employee can have. Go for it!


edmontonalberta
1 week ago

@drummondbass

Hate to burst your bubble; not only does your boss not know what you are dealing with – they do NOT care about you or your challenges.

Your boss cares about how they appear to their supervisors; they care about their job security, their bonuses / pay raises, etc…

There is a reason Dilbert (written by Scott Adams) was popular 30 years ago; there is a reason this comic strip is still published today. It is relevant to the employer / employee relationship!


stumbler
6 days ago

@drummondbass , have a read through the following, which might provide some ideas for you :-

https://support.mstrust.org.uk/file/store-pdfs/Working–studying-with-MS-WEB.pdf


drummondbass
5 days ago

@stumbler thanks for that. I’ll definitely take a look


rel12
5 days ago

Hi @drummondbass !
It would be great for people to know the struggles & get some education on MS in the workplace!
I never experienced this since I never told my job that I had MS and figured they really would not care. I would always think about saying something but then thought “what would actually change?” I decided to take on the roll and it would be up to me to know if I would be able to handle it or not. I am sure people would have their feelings about it but in corporate or any job, the job needs to get done & money must be made. LOL Even though I did go through my symptoms alone at my desk haha, it was nice to know that people could’t even notice what I had. It was kind of nice forgetting about it for a bit!


drummondbass
5 days ago

@rel12 it really would, the problem for me is my work is like 90% physical! I can do my job pretty much as i could before it hit me but i do struggle with fatigue and aching in my arms. When i had my first relapse last year it kept me off work for 3 months and they were good enough to pay me so when I got the diagnosis i felt it was fair to tell certain key people about it. I bet it’s often hard to be at work and nobody around you knows and can be confided in :/ i just think my boss often doesn’t realise that i do have days where im not even close to 100% and just because im not relapsing doesn’t mean it’s business as usual haha. I digress though, i guess there are likely people in my position who get a tougher time than me, as for the most part they’re understanding. Hope you’re doing well 🙂


doubleo7hud
5 days ago

Since being diagnosed matey I find that most people are actually 🔔 ends no matter where you are, there’s only a hand of reet folk in the world 😂. I can honestly say tho hand on heart before diagnosis I would not have been as understanding. It’s our job now I guess to spread awareness of MS. I just tell everybody and anyone if they ask why my legs are like a couple of giant rubber dildos (most of the time in those exact words too 😂)


rel12
5 days ago

@drummondbass Ugh no! Tht is a tough situation when your job is mainly physical and your dealing with the MS. That was nice of them but I am sure it would be much easier to have everyone know, especially your boss! Yes, it was hard but luckily I was able to keep it together until the job became really stressful and had a mini relapse. I had to make the decision to leave and focus on my health since it is still pretty new to me. Hoping it gets better for you!


drummondbass
5 days ago

@doubleo7hud tbf I haven’t experienced anything like that thus far and the majority have been sound. I have kept the circle of knowledge as small as i can, not that i don’t want people to know but only if i decide to tell them myself. Im lucky that its not obvious to look at me that i have anything wrong, if you were around me a lot you may pick up some hints but that’s rare


drummondbass
5 days ago

@rel12 ot can be tough but so far im coping, my 1st full ocrevus infusion is in 2 weeks so hoping will get some energy back that would help massively. I would love to be able to cut my hours back but unfortunately bills still need paying and saving for my wedding too so just gotta keep pushing through lol. Nice to hear you’re able to focus on your health 🙂


rel12
5 days ago

@drummondbass Yes unfortunately we have to work, life! haha You have something very exciting to save up for – congrats! Good luck!


drummondbass
3 days ago

@rel12 yeah we do 🙁 it’s just hard lol


karlsohare
3 days ago

Hi @drummondbass I defo second that I’m in the same boat and I get the funny looks when I’m off sick due to ms and it’s like they look at you like your making it up because they can’t see it to understand


lea_jeffreys
2 days ago

I’m lucky. Was diagnosed with RRMS in 2009. I work full time for a small company (53 employees). My directors have been very supportive and there have been times when I had optic neuritis they have picked prescriptions up for me. If I need to take things easy they are understanding. I am truly grateful.


rel12
2 days ago

@drummondbass You guys will find your way & it will work out!

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