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itsmewithms
2 weeks ago

If you have any symptoms you are concerned about you should talk to your neurologist office ASAP. This is not one of the drugs I have taken but if you use the little magnifying glass in the upper left you will see many discussions on this treatment by others in the group.

There is also a lot of information and sites that come up in a simple google search. In this one I don’t see multiple myeloma listed specifically but other side effects-
https://www.gilenyahcp.com/tolerability-adverse-events?site=SO080062

Your system likely works differently than ours in the US but I would need to start with my Neurologist and they would refer me to the Oncologist if there were symptoms that pointed towards multiple myeloma

There is also a support line for this drug https://www.gilenyahcp.com/gilenya-go-program

I actually see a post of “In a recent study published in the Journal of Experimental Medicine, researchers found that fingolimod (sold as Gilenya), an FDA-approved orally administered drug to treat multiple sclerosis, could reduce painful side effects of multiple myeloma treatments.”


cameron
2 weeks ago

They screen for serious side effects when you’re on the drug. There are six-monthly blood tests for kidney and liver function plus they monitor the white blood cell count (which naturally reduces when on the drug) … plus likely lots of other analysis. I have to have an annual skin screening, because there is a known – although small – increased likelihood of skin cancer. Hope that helps, x

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