Last reply 5 months ago
Tecfidera: sinuses & sensitive to odour

Hi,

My sinuses have been playing up since November – had to take antibiotics in December for a week. I also noticed that I got more sensitive to odours especially aerosols like deodorant or perfume. Anyone else on Tecfidera notice this? I’ve been taking it for just over 1 year…

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mlgilber1
7 months ago

I’m super sensitive to smells now that I can’t even spray a perfume on me even just once. I’m not on Tecfidera though, I used to be, but only for a short time. I started becoming sensitive to smells shortly after being diagnosed.


stumbler
7 months ago

@stephz , I’m tempted to suggest that the problem relates back to the sinus situation in November, rather than the Tecfidera that you started a year ago.

Here’s some details about this type of general problem :-

https://www.nhs.uk/conditions/lost-or-changed-sense-smell/


stephz
6 months ago

Hi @stumbler and @mlgilber1 Thanks for your replies – my sensitivity has gone down a bit since my sinuses got better but I think it’s related to Tecfidera affecting the sinuses…have heard this from some others as well…


mlgilber1
6 months ago

@stephz I think it is related as well. My sensitivity to smell has died down a lot since I’ve been off the Tec.


dominics
6 months ago

@stephz 9y on it and never an issue with that. Doesn’t mean it isn’t a thing though.


stephz
6 months ago

@dominics I have now heard from a couple of people that they have more sinus issues since starting tecfidera – maybe we all had some issues before that are highlighted due to the immune system being suppressed…who knows…I’m seeing my neurologist on Wed so will check with him


doubleo7hud
6 months ago

Not had this but does anyone else get the tramp type drippy nose thing 😂 only way can describe it at this time of night


vivien
6 months ago

@steph_z & @double7hud

I get a drippy nose back and forth and had a sinus infection early November too!

I’ve always had allergies, but it doesn’t feel like that 🤔


highlander
6 months ago

@doubleo7hud
I’ve had a drippy, runny nose since I started on Tec, MS nurse says she’s never heard of it from other people and she’s got “years of experience” , so I’m guessing we’re all making it up…..
Just get more handkerchiefs.
Antihistamines don’t work for me either tried that.
Rubber bungs work but they scare the kids.


potter
6 months ago

When I first started on Tecfidera my nose dripped big time, sometimes I felt like someone turned on a faucet especially when I bent over. It eventually became a drip, I have been on it so long I can’t remember the last time the old drippy nose bothered me. I never had any problems with my sinues and I have always had a good sniffer. My neuro told me that the drippy nose was a common problem with the Tecfidera. Potter


stephz
5 months ago

@potter @mlgilber1 @highlander
I have a sinus infection again – had the last one in December…got antibiotics again and some tips to keep the sinuses happy. Thought I share them

– regularly have a face steam
– watch radiators and car blowers (dry air is bad)
– use a salt solution nose bath – depending on weather maybe once a week/fortnight
– go outside (I go running and I really makes my nose run which is good as it cleans it)

– if it doesn’t improve you can get a steroid nose spray (trying to avoid that at all costs)


rmdaniels
5 months ago

This is fascinating. I have had a nose faucet going on since I started Tecfidera in February. I’ve always had sinus problems, but this is out of the norm.


highlander
5 months ago

@stephz
Thanks for that, please forgive me for being a bit thick…..but can you elaborate on a nose salt bath?
I’m intrigued.
Cheers


highlander
5 months ago

@rmdaniels
We’ve got to stop meeting like this, people will start taking! 😂


grandma
5 months ago

Like Highlander and double7 hud I suffer with the drippy nose as well! Very difficult when you’re trying to cook on the rare occasions that you’re having a good day, very annoying but we learn to live with it. A small price to pay? I think there are too many of us for it not to be Tecfidera related, but obviously some ms nurses haven’t come across it sufficiently🥊😜


stephz
5 months ago

@highlander I think it’s actually called nose shower or nose rinse…basically you get a special salt solution and rinse your nose with it – the bottle makes sure the pressure is enough to get into your sinuses – I have this one: https://www.boots.com/neilmed-sinus-rinse-kit-10077009 but need to start using it more regularly to clear everything. GP said infection happens when the sinuses get blocked so cleaning them should help


stephz
5 months ago

@grandma – I keep forgetting to tell my MS nurse but it be worth mentioning as it could be added as a side effect/warning if enough people report it…


rmdaniels
5 months ago

@highlander
Yep, you never know where a runny nose will lead you! 😂😂😂


highlander
5 months ago

@rmdaniels
😂😂😂😂

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