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7 months ago

@tallritchie , even just having MS, being immune-compromised, leaves us vulnerable to contracting Shingles. Even more so for you, as your immune system is just reconstituting.

Were you not offered a Shingles vaccine prior to your Lemtrada?

Personally, I would not take any risks until you have had a chance to talk to your MS Nurse or the infusion ward where you were treated.

7 months ago

@stumbler Many thanks for your reply goes with my view too

I had the Chicken Pox vaccination in Q2 and was told I would not be able to have an active vaccination for 2 years

Shall try my nurse tomorrow but have already told my folks that I will not be with the greater family on Tuesday

7 months ago

You can only get shingles from chicken pox is what the doctors told me when I got shingles so you should be fine since you were vaccinated against chicken pox. Also, only the liquid inside the blisters is what’s contagious.

7 months ago

Had Shingles a month ago. Was told by the doctor in A&E that in you had chicken pox as a child, it never goes away and stays in your body, and then, like the ms, something triggers it years later, stress, another infection etc., which is why it usually occurs in us older folks. Not good with the ms, but the Drs found what it was straight away, weeks worth of very specific antibiotics, mad itching (obviously) but 2 days in the tablets started to work and all was ok. Found out a couple of things, usually appears on the chest or face. If it’s on your chest/stomach, does not cross the breastbone line, so either right or left. Apparently as It’s a disease if the nerve endings so is contained of one half of the body if it’s on your chest, if it appears lower down, I.e. stomach it can go all the way round like a belt. Mine started with a rash and mad itching, which my then lodger, who was a nurse, treated straight away at 4pm, by midnight, (and she worked nights) it had spread and was itching like mad, knew it wasn’t the ms, after 25 years I recognise a relapse when I see one, so called an ambulance, usual 10 hr wait in A&E but they said within 5 minutes of my finally seeing a Dr what it was and was out the door within an hour. Marvellous our NHS, 11 am, no money, no-one at home, went in electric wheelchair, asked how I was supposed to get home, they told me that was my problem not theirs, so caring👹

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