Last reply 1 month ago
Seeking advice

Hi there im just wanting some advice and help really. In a nut shell I am 25 years old and had this illness since just shy of my 16th birthday (great gift that was) anyway last year after my birthday i suffered a miscarried (first time pregnant as well) and that sent me down a dark dark hole anyway I got joys news after suffering the worse sickness and dizziness ever I found out I was expecting again :). I’m mainly writing this for advice from anyone about dealing with ms and pregnancy i have stopped all my meds and one that isn’t ms related as I developed stess induced heart palpitations. I suffer a lot with ms headaches and back pain mainly lower back any advice tips or anything would be warmly welcomed as I’m scared silly thank you in advance

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


highlander
2 months ago

@beefirefly
I’m sorry for your loss..
Under your post above you’ll see some boxes relating to the things that you mentioned.
Click on them and it’ll take you to other posts made about that subject.
Feel free to ask anything you like we’ll try and find an answer one way or another.
I’m sure you’ll get many more replies from other lassie’s soon who have more knowledge than I do.
Welcome again.


beefirefly
2 months ago

Thanks you very much


itsmewithms
2 months ago

Hi- it sounds like a crazy time for you. I had my first diagnosed symptoms when my daughter was 2 so didn’t have to manage MD during pregnancy. I had had some symptoms that I now associate with MS before pregnancy but were explained as other things. I developed a blind spot in one eye during pregnancy where the small kidney shaped space was filled with a checkerboard pattern. It was always there and unchanging. I went to a neurologist many times during this trimester and had some tests although they did not want to do MRIs as they weren’t sure how they impacted a fetus back then. They were concerned about inner ear development at that time but I think now they have debunked that. Anyways, in the 3rd trimester the wonderful hormones of pregnancy made all symptoms disappear. This is pretty common, I think, and has been tested to see if they could be useful in treating MS or used during attacks.

This video from Aaron Boster discusses pregnancy and MS that may be helpful:

He talks about some options and all the phases of pregnancy-

Hopefully you are with a good Dr given your medical history and having MS and this video gives you some information helpful in the discussion. Good luck during this time that is stressful enough for anyone and it must be difficult to carry this additional worry. While it would have been better to know I had MS during my pregnancy I’m also kind of glad it wasn’t even on the table.

Good luck and hopefully you find the video helpful and find good professionals to work with-


stumbler
2 months ago

@beefirefly , I’m sorry that you’ve been having such a torrid time. Hopefully this light at the end of the tunnel will continue to glow for you.

There’s a few videos here which might cover some of your concerns :-

https://shift.ms/women-and-ms-planning-a-pregnancy-report

As for lower back pain, I’d normally post details about some useful stretches which could relieve the pain. But, I’m hesitant because of your condition. If your GP gives you the OK, You’ll find lots of instruction on YouTube.


helenjr
2 months ago

Hi @beefirefly,
The way you are feeling sounds completely understandable, but congratulations on your pregnancy. I don’t have any relevant experiences to share, but I’d suggest looking up the buddy scheme on Shift.MS, and possibly also reach out to @amyshift who may be able to pair you up with someone on here who has been through pregnancy with MS.

Sometimes a proper conversation with someone who gets it is all you need to expunge those fears and help settle your nerves. Hope they’re able to help!


amyshift
2 months ago

@beefirefly, I’m not surprised that you’re scared, it sounds as though you’ve been through a lot. Being pregnant, being stressed and having MS is a lot to handle. There are certainly plenty of members here who can relate to your situation I’m certain.

The Buddy Network is generally to support newly diagnosed MSers help deal with their diagnosis but we look at each request on a case by case basis. You can find out more information: https://shift.ms/the-buddy-network

Alongside ensuring you have regular contact with both your MS healthcare team and your antenatal support team, you might also find some of MS Reporters series helpful. These two series in particular might be of some help:

Take of yourself.


beefirefly
1 month ago

Thank you everyone its all been a big help x

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.