Last reply 2 months ago
Results

Hi been having scans and test for over 2 years brain scan was ok a year ago but the results of my lumbar puncture came back positive, what does this mean? Now I’m been put back on list for MRI head again?

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charlotte_wright
2 months ago

Hi @snow! And do you know what they were testing for with the lumbar puncture? I’ve had a quick check, and there’s a few things they can catch on it, like infections, cancer, haemorrhages, ms, guillan-barre. See, if it was an infection, like meningitis, they can treat it easily. A haemorrhage would have probably been sorted there and then. Cancer, I suspect, would have been referred to another specialist, and stuff like ms would probably need another mri to track if theres any changes, meaning it would require constant monitoring and possibly medication.


snow
2 months ago

Looking for MS so lumbar results show positive for MS but brain scan only showed a cyst but no lesions, so waiting on another scan as last one was over a year ago..


charlotte_wright
2 months ago

@snow so it looks like you’re in very early stages then! It’s something to be happy about, because the earlier they can confirm its active, the earlier they get you on treatments, leading to less symptoms you’d get, and the less impact on your life. From my view, if there’s something they can monitor, the better the outcome. If the mri doesn’t show anything, it would possibly mean that they would have to look deeper into the causes, which would mean more tests and aggro. The mri would just be a means to keep an eye on you and monitor any changes, and the results from the lp would be a confirmation that they need to keep watch.


itsmewithms
2 months ago

Hi @snow I think I just saw yesterday that the average diagnosis of MS takes 4 years! crazy. Thankfully mine was quickly diagnosed when I had an obvious symptom (foot sticking out at a crazy angle) but several years before that I had weeks of a strange issue that I now recognize as foot drop but was thought to be caused from a pinched nerve due to a kick-boxing exercise class.

I think Dr Boster had a good video on diagnosis https://www.youtube.com/watch?v=0csvVXatlFo&t=11s

As for me the most troubling lesions are on my spine although I also have brain lesions. If they have only checked the brain they may need to extend the scan. Also keep in mind that there are other diseases that can have lesions and others that mimic MS…so diagnosis can be tricky.


stumbler
2 months ago

@snow , as @itsmewithms suggested, MS lesions can appear on the brain or spinal cord. So, a brain and full spine scan are required to be comprehensive.

However, not all MS activity can be picked up by an MRI scan.

This is how the National MS Society explains it :-

“On the other hand, a normal MRI does not absolutely rule out MS. About 5% of
people, who are confirmed to have MS on the basis of other criteria, do not show any lesions in the brain on MRI. These people may have lesions in the spinal cord or may have lesions that cannot be detected by MRI.”


snow
2 months ago

Lumbar puncture says it’s MS but was not a lot to see on head CT last year but spine CT shows bulging disc and nerve damage.


kateb
2 months ago

@snow, I have had symptoms for about 8 years, but mri was clear until about 1 and a half years ago.

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