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11 months ago

@bonang1975 , you might find the following useful in determining what is and isn’t a relapse :-

I can honestly share your frustrations with this condition. 😡

11 months ago

It’s very difficult to tell. What’s ‘normal’for you, obviously the fatigue is worse than normal, are symptoms exacerbated? These are the questions a neurologist will ask. I have had the beast for 25 years, and I know when I am relapsing, if .I don’t get steroids quite quickly I will lose my sigt, be unable to pee for myself etc., but up to now steroidshave always worked, but how handy the

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