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simone2
3 days ago

Hi, when i was first diagnosed my husband brought me a book by Judy Graham Ms naturally it really helped me gave me hope, it does get easier to accept with time, i was so shocked when first diagnosed it seemed like it’s was the end of the world but life just becomes different but still good, i look at things so much differently than before and try to enjoy ever day


simone2
3 days ago

Hi i noticed you like beening outdoors, i feel so much better when outside in the fresh air and exercising so keep doing things you love.


tiffscriv
3 days ago

Hi, i was diagnosed in February and I’m still processing it, I don’t think it has actually quite sunk in tbh! That best thing i have found is do you research, there’s a lot of material out there and support should you need it. As @simone2 has said continue doing the things you love. Give yourself time and don’t be too hard on yourself, MS is a marathon not a spirit. You will learn tips and trick on how best to deal with your individual symptoms. Take care of yourself.


vixen
3 days ago

Hello @nicole_kelly, welcome to Shift. If you use the map function, you will be able to see if other Shift people are in your area. Yes, it’s good to research but make sure you only use official sites for accurate information, such as MS Society or MS Trust. Otherwise things can get overwhelming and provide inaccurate information. Has anyone spoken to you yet about DMDs? These are disease modifying treatments which slow down the disease. There are quite a few young people like you who use this website too. Are you at college or working? I understand that it feels like the world is collapsing at the moment, but that will get better. It’s really important that you don’t let go of your hopes and dreams. What you can do though, is try to live as healthily as possible, with diet, sleep and exercise. And definitely don’t smoke! You can post anything, or ask anything you like on here, lots of people ready to help support you on your journey 🙂


ralee
3 days ago

Hello @nicole_kelly welcome, I’m new in the MS camp to having been diagnosed in January. Theres never a right way to take the news but as others have said just make sure you’re kind to yourself.

I also love being outside and I also like gaming lol. What games are you currently playing?

Take care


mjbarrett
3 days ago

@nicole_kelly
Hi! I have not been formally diagnosed yet, but it appears to be moving that direction, and I completely feel what you are going through. It is a scary thought, especially since I am a PT and have worked with many with MS, some with severe deficits….I have also worked with some with MS who I would have never had a clue of their diagnosis if I hadn’t seen it in their medical history. I do have a couple friends with MS who are truly inspiring and give me hope…one who works 40+ hrs/wk in a high stress home care nursing position AND is going to massage therapy school.

The trick is to stay positive and do your research. Some have told me to stop reading so much about MS; they think it scares me, but it brings me comfort. I believe if you don’t know much about a subject then you will inherently fear it, so gaining knowledge and insight helps me understand it…and also may help my doctors in diagnosing/treating me. My doctors never put all my symptoms together and my research and bringing attention to everything is how I am now on the road to a diagnosis. As mentioned above, be careful of the source. If you are a bit science minded then I highly suggest researching via scholarly articles but those are difficult to read and make sense of if you aren’t familiar with reading research.

I am new to the site so unsure of all the rules, but I would he happy to chat/text privately any time. It is nice to have someone to talk to who understands what you may be going through. I know I feel annoying and guilty at times venting to my family and friends about my constant symptoms and issues…I don’t want to wear them out.


stumbler
3 days ago

Hi @nicole_kelly . That really is s**t luck to being given this diagnosis in you 18th year. That’s so not fair.

There’s some great advice above, so read and re-read it. As far as research is concerned, the “Newly DIagnosed” tab on this page is a good place to start :-

https://support.mstrust.org.uk/shop

MS is still suffering from the bad press it got years ago. Things have changed, are changing.

MS is not going to kill you, it is not terminal. It does not mean that you will be in a wheelchair anytime soon. With a treatment strategy in place, Disease Modifying Therapies (DMTs) have been mentioned above, MS can be just a minor inconvenience as you get on with the rest of your life.

You may even find that MS may be behind some of your chronic pain, which may lead to better treatment.

Take care


rachael17
3 days ago

You definitely did a fantastic thing for yourself by joining a site like this! Your family and friends won’t be able to understand everything you’re going through, but we will. Ask questions, research MS and find resources for information, it’s not all doom and gloom don’t worry. You need to make yourself and your happiness your priority, and we’ll all be here to talk about absolutely anything 🙂


itsmewithms
3 days ago

Welcome, I guess…this isn’t a club any of us really wanted to be in 😉 but we are in it together at any rate. I’m in the US and second the recommendations above. One of my favorite experts on this side of the pond is Dr Boster a good day’s drive south of me. He has hundreds of useful videos and this one to the newly diagnosed https://www.youtube.com/watch?v=wvQXygHtYzc&t=13s

Good luck-

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