Last reply 2 months ago
MS, The 'Gift' That Keeps on Giving …

Hi guys. First post, so here goes – I’ve gone from R/R to PPMS. It’s a bit frightening but it’s nice to talk to people who understand. I’ve been put on the W/L for Rituximab infusions although from what I’m reading the results aren’t great for PPMS – anyone here have any experience? I’m determined to be as positive as I can and to find ways to adapt – hope you’re all ok. Keep fighting πŸ™‹πŸ€πŸŒ»

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2 months ago

You don’t go from RR to PP, it’s RR to SP (Secondary Progressive) and as I understand it Rituximab is successful in its treatment

2 months ago

Well that’s what I was told last apt. My Neurologist is lovely and I def have noticed a detioration in walking ability – anyway, what does it matter, I have this blasted condition and I’m going to have to get on with it (maybe it’s always been Ppms) it is what it is … Adapt n conquer πŸ’ƒπŸ€πŸŒ»

2 months ago

I have PPMS and have also seen a deterioration in walking but hoping it was my body getting used to the Ocrevus after the second half.

2 months ago

@marian_kiely , if you ever had relapses from which you recovered, you may have transitioned to Secondary Progressive MS (SPMS).

If you’re still having relapses, then recovering, you are still Relapsing/Remitting MS (RRMS).

If you never had relapses, from which you recovered, you are Primary Progressive MS (PPMS).

Your Neuro may be very nice, but, if he has not been able to convey your specific diagnosis, I have to question their MS credentials………

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