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jen1973g
6 days ago

Hi
I’m newly diagnosed I was fine with it at first but now it’s sinking in


glitzybabe
6 days ago

I’m sorry to hear about both your diagnosis. I was diagnosed in 2002 and even though I’ve had it nearly 20 years every day is a journey
The best thing you can do is been on this chat and generally having a good network of friends and loved ones around you


clarew
6 days ago

I was the same. I was fine and almost positive when I was told but now I think it’s sinking in and I feel so down and upset. I just want to go back to my life before any of this and don’t know what to do.


arya
6 days ago

Sorry to hear that. You can send me a message if you need to talk!


itsmewithms
6 days ago

I really just have one friend that I have told that I have MS besides close family. I was diagnosed in 2005. I was discussing my strange issues I was having during my pregnancy with her as she is a close friend and married to a pediatrician. This was very helpful when my daughter was born a month early and we needed a Dr for her earlier than expected! thankfully she didn’t have any health issues other than being a month early and coming home from the hospital at 5 lbs. That may be normal in other parts of the world but a Swedish/german infant in the US Midwest is more commonly in the 7-8lb range.

This one good friend has been a real grounding rod for me as she is also an accountant and has a similar logical thinking pattern as I do. She went through benign brain cancer a few years ago and I could be there with her then too. Many tears and many laughs as well. We could discuss her physical and mental struggles through recovery and they were relatable for me with MS and she can relate to what I feel and say as well.

I don’t know how to help you in developing this network but I know this group has also been very helpful for me since I found it just a month or so ago. I don’t know where you live to know if there is a MS Society in your area that would be helpful? could check that…go through your list of close friends and see if there is a candidate and use this site or others. Yesterday I also found “Life of Seb” on youtube and he has a lot of stuff out there. Encourage checking that out https://www.youtube.com/watch?v=NTFt49VErbM&list=PL6ER_vJj2m6LvGc6UsWB1pehBPNtEiaTA

Roger Southall as well, great stuff, not working right now so I have a lot of time to surf and discover https://www.wholesorts.com/?fbclid=IwAR3CaLiToAo2I__8R1phVSSyyiS1oNWBHI1MT-m0pKyXvH9y73oljixZFAk

Good luck! use this site, and others, and explore your network for support.


jen1973g
6 days ago

Message me anytime I feel exactly the same


itsmewithms
6 days ago

Was surfing the Canada MS Society in response to another post and ran into something they are working on that may pertain and be helpful to the newly diagnosed?
https://mssociety.ca/research-news/article/developing-and-testing-an-interactive-online-patient-decision-aid-to-assist-those-newly-diagnosed-with-relapsing-remitting-multiple-sclerosis


peterfrancis
6 days ago

@clarew

I was diagnosed with SPMS 2 years ago and still feel losst, confused etc. It’s normal to feel this way, remember that.

All the best, message me any time you like.

hello,
I just came on this boat. as GPs made mistakes in here who were treating me for inner ear infection. I went to poland and after two days I was in hospital. with MS diagnosis.
now I am waiting here that ms specialist will go through my story and hopefully will start treatment
so yeah I am very new here and lost really
so w will be very happy to chat to people
as we are together now
wish you all the best and I cross my fingers that you will feel better.


shelley44
6 days ago

@clarew . Sorry to hear your a bit lost about your diagnosis ..I was diagnosed with few things before been diagnosed with Ms last year .it was like a weight off my shoulders to finally get to bottom of what was wrong and get help and support as before I was like no one was listening r believing me …hope you are ok x


wendyhills
5 days ago

It was expressed to me once like a grieving process. You have to allow yourself time to come to terms with how your life has changed and your limitations. It takes everyone different times to adjust it took me about a year I was diagnosed early 2018 and I’m only just accepting it. I still have moments when my fears and thoughts take over and not sure where to turn I normally go on here and chat or just read through what others are going through it helps to see your not alone. I would say just be kind to yourself and take it at your own pace and meanwhile there are loads on here happy to chat and support xx


steph_burnage
4 days ago

I’m in the same place. Only got my diagnosis in August, had my first MS appointment today. Feeling completely lost too. Trying to decide on treatment options when I’m still reeling from the diagnosis. It’s really hard. Please get in touch if you want to chat, I could do with someone to talk to too.


n3tm4n
4 days ago

If it helps @clarew I was diagnosed last christmas, and am working through things. Sounds like you have lots of offers already, but feel free to msg anytime. I’ve gained a lot by exchanging messages here. You have made the first step by posting the cry for support, you will find plenty of people her asking and providing support. MS seems to have as many similarities as differences from one to another, but all here with MS will no doubt have something to share.

Keep smiling, welcome and best wishes.


clarew
4 days ago

Thank you everyone so much for all the comments and support. I’m still trying to sort my mind out with it all. Some moments I’m fine and then others I’m a mess and inconsolable. It helps to read through comments and know others are going through or have gone through rhe same.


itsmewithms
4 days ago

How you are feeling is totally understandable. I was diagnosed 15 years ago but new symptoms and changes just happen and I have to readjust my expectations yet again. It is a constant process of adjustment and acceptance.

After seeing this post a few days ago I ran into an article that is for the newly diagnosed. It may have some ideas for you as well as the excellent advice offered by others in this forum https://www.healthline.com/health/multiple-sclerosis/what-ifs-after-diagnosis?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=multiplesclerosis&utm_content=2019-10-10&apid=29101565#will-ms-get-worse


vixen
4 days ago

Hi all, recognise all those feelings of feeling lost, bewildered and alone. I’ve been diagnosed nearly three years and it will get easier. But as said above, you do need to give yourself time, and really, really look after yourself. It’s tempting to keep trying to prove that you can still do things but honestly, this doesn’t serve a purpose in real terms. Don’t overwhelm yourself with stuff on Google which may, or may not be accurate. Nowadays, we live constantly in the edge of new research and discoveries. Even in the last three years I can see how things have developed. So, eat, sleep and live as healthily as possible. Your body will need time to recover from whatever has led to your diagnosis, as well as the impact emotionally. Stay tuned for company, and keep posting any questions or worries you have x


amym
4 days ago

@clarew I’ve been diagnosed 18 months. Been on that journey, happy for you to message me if you want to chat.


nutshell88
4 days ago

hi
@clarew
dw you’re not the only one we’ve all been there
but overthinking worrying wondering about it very deeply isnt good
it leads to nothing but ms thinking about itself
so ignore it live your life as you’ve been enjoying it all your life achieve all your goals and more ms gives us time hehe to do however we want for a while years maybe maybe many years or few or forever who knows 😉
so instead of wasting these years thinking about ms who will take its fare share of us probably
enjoy these years best you can and stay strong and confident no matter what happens its still who tou you are 😉

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