Last reply 1 month ago

Have just had the first discussion about medication. I’ll be injecting….tell me this is no where near as bad as my brain is making it out to be!! I’ve been asked to read up before my next call, recommended interferon…any advice?

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1 month ago

@staceyelena , you’ll find that the thought of injections is a lot worse than the actual injection itself.

As to the choice of Disease Modifying Therapy (DMT), you have been offered a first line DMT, which is now 30 years old. Better treatments are available.

The latest thinking is to hit the MS hard and fast with the most efficacious treatment. This tries to avoid your MS getting worse as you step up through the DMTs.

Have a look here:-

1 month ago

It’s something you get use to, even my husband injected me when I couldn’t get to centain sites and he’s really terrified of all things especially of injections but he got use to it, you can use an auto injection which is really easy to use you can’t see the injection don’t worry you will get use to it.

1 month ago

I have to agree with both of the above posts..I was on Copaxone (Glatimer Acetate) starting in 2005 basically because that was about all there was. Still had some relapses and an occasional Hug reaction from the injection and more lesions. I was switched up to Rebif and still had progression. Now I have been reclassed to more SPMS and moved up to Ocrevus. I haven’t had new MRIs since starting that last fall but feel like that has finally shut it down…we’ll see.

But as far as the injections- It will take time for you to find injection sites that bother you the least and depth(s) for them. Their idea to use the top of the thigh for me was a really bad one I don’t seem to have a fat layer there to work with so my Dr recommended my inner thigh where I have a decent fat layer to hit as well as on the tummy avoiding too close to the belly button. Your care team will help you identify good spots for you and depth. I found the auto jet I had for copaxone (where I loaded in the syringe) to work better for me than the auto eject all built into one that I got with Rebif. I ended up asking them to switch that to the syringes and send me a auto pen like I had for Copaxone. If you have any issues with the injection the nurse team will help you work it out. It was finally stressed to me (basically at the very end!) that it helps to rub the spot out after the injection to disperse the drug…not sure why that wasn’t emphasized in the beginning! to ask questions, take notes and even possibly record it to listen back to make sure you capture it all 😉

Then also the point Stumbler made, there are stronger alternatives now and many neuros are advising a stronger defense on the front end. I wish it had been available when I was diagnosed! So – I’d recommended watching Dr Boster’s videos of “New School” vs “Old School” and understand the “escalation theory” of treating MS vs the more modern stance. I’ve learned to ask a lot more questions! But here is where Dr Boster feels Copaxone still fits in as a treatment for MS…if you are thinking of starting a family and/or you have a real aversion to risk (not of MS progression but of DMTs)…with so many choices there are a lot of things to consider when choosing a DMT…ask a lot of questions (like you are 😉 and work through what is right for you 😉

Good luck-

1 month ago

I self inject and only ever had problems with the 1st one, literally every single injection after that has been incredibly easy.

I’m on plegridy, and its working very well for me at present.

1 month ago

I was injecting Rebif for 10 years and had no problems. The thought of it was worse than actually doing it. Good luck x

1 month ago

I’ve been injecting Rebif for the past two years. If you are to go on Rebif, then you can get the autoinjector (The Rebismart), it makes the whole process really easy.

1 month ago

First injection of Copaxone today for me! Was on Tec, which did not suit me. Was getting organised to start either Mavenclad/Gilenya, but thats on hold till the covid chaos abates. Went better than I thought it would. For me it was that thoughts of doing it was worse than the reality. While I would rather not have to do it, I’m glad I have an alternative in the hopefully not to distant future that dosn’t involve injections. best of luck

1 month ago

Hi I agree with the other’s it does get easier. I’m on avonex I don’t inject as such I have the pen with us a lot better and easier good luck

1 month ago

The other posts are right, it does get easier until it doesn’t… I injected Avonex with an auto injector for a year with no issues. Then one day i just couldn’t do it.
After a lot of self blaming and shame the only way out was to ask for help so for the next 2 years I visited a good friend every Friday morning before work and she did it for me.
I know it’s not ideal and I’m a big baby but it cut out that stress and was a means to an end until I was accepted for Campath.
I do still feel guilty when I see others do it so easily but my advice to you is to forget that and do whatever is necessary to get the treatment you need. Don’t beat yourself up, find what works for you and focus on what you can do to feel better.
Best of luck and keep safe 😊

1 month ago

Thank you so much everyone!! ❤️

1 month ago

@rhona74 I’m on Gilenya for past 3 years after doing injections for 4 years

1 month ago

@staceyelena I’d ask your neurologist why you are being offered such an outdated drug? Newer more effective drugs are being used as @stumbler advises there are sites where you can research.
I had Copaxone in 2016-17 Knowing what I do now I am flipping angry about it. My neurologists were so outdated. I changed hospital and never looked back. Fight your corner
good luck

1 month ago

Yes, it is REALLY disturbing that you’ve been prescribed a drug that is so limited in its effectiveness. What it shows is that your neuro has not kept him/herself up to date with everything going on in the world of MS. Ask yourself this: if the newer drugs were at all dodgy, why would NICE have given them the go-ahead and be willing to pay for them? I would also be asking myself: ‘if my neuro is behind the times re: drug choice, what else about my MS treatment can’t he be bothered to find out about?’ And what might that mean for my future with the illness?

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