Last reply 7 months ago
Bed wetting

Hi everyone,
I super embarrassed about this.
I have had some issues with wetting the bed recently. I’m on gilenya & I’m getting on very well.
Feels like maybe the message isnt getting to my brain quick enough?

I’m seeing my MS Nurse in a couple of days.
I’m just getting so upset about it, I’m only 25 and it’s so undignified.

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7 months ago

Don’t be embarrassed, I’m 36. I make sure I go before bed and don’t drink anything late at night. Thankfully no more accidents. We can’t help it when it happens. We’ve probably ALL done it

7 months ago

@rose93 , you are definitely not alone. It’s a bit of a problem for MSers :-

Ask your MS Nurse to refer you to Continence Services, who can then help you understand what the problem is and how it can be mitigated.

The worst thing you could have done is keep quiet about it, so you’re already closer to a solution. Bad word, closer to an answer. 😉

7 months ago

@ rose93 I’m a grandma now, if you hadn’t guessed by the sobriquet, I changed my daughters nappies 39 years ago, changed my granddaughters 14 years ago, and now I have to wear them. They do provide waterproof things from the hospital but they are awful, get ones sold for kids when they are learning to go through the night. Had a few left, I’ve been using them ever since when I’m having a bad few days. You are not alone! We’ve all been there, don’t be embarrassed, ever, you will learn to live with it happening occasionally, but have you checked that you haven’t got anything else wrong I.e. uti, or any other infection cos that can cause loss of bladder control👂👏😍

7 months ago

Thank you guys. You’ve made me feel much better about it. I’ll see my nurse Wednesday & hopefully she can help. Your support is greatly appreciated 😃

7 months ago

@rose93 , call it “Nocturnal Polyuria”. It sounds less embarrassing. 😉

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