Meet Our Volunteers
I wanted to be an MS reporter mainly to help support newly diagnosed MSers and share as much information as possible on what they can expect from the condition as well as how to deal with the symptoms.
From a more selfish perspective, I also wanted to learn from others MSers. It has been a great opportunity to meet and talk to other young people in my position, to moan about the tricky situations we go through and also to find the funny side of MS and have a laugh at our own expense!
I became an MS reporter because after I was diagnosed I spent a time (and rightly so) grieving and just focusing on the things I could not do anymore. One day a very inspirational gentleman came to speak at work and reminded me that there was so much more to me than the MS.
Being an MS reporter meant I could do something positive with myself, and help people who were newly diagnosed. I would have been incredibly grateful to have someone positive offering support when I was first diagnosed. It can be a scary and lonely place. If I could be there for at least one person… and if I could make that small difference… yeah, I’ll be happy.
We’re in this shit together and it’s important for me to do something positive for MSers.
That’s why I’m a reporter for Shift.MS, interviewing consultants about DMD’S and cannabis, researchers on technology and counselling psychologists about relationships to name a few; asking question put forward by the community followed up with questions on my own.
Our community needs you. Volunteer for shift.MS!
Having been diagnosed with Multiple Sclerosis in 2016, I joined the shift.ms team as a champion for the Luxembourg Area in Autumn 2017 – and recently, I took up the role of a MS Buddy. Since embarking on my volunteer role, I had the opportunity to meet a variety of fascinating and compassionate people – such as our local MS organization, and a lot of the Luxembourgish MS Community, and of course the shift.ms team.
I hope to draw more young MSers towards shift.ms as I believe the support shift provides is vital for every newly diagnosed person. Further, as well as giving, one receives a lot of support – a reduction of the feeling of isolation while being involved in such a great project fuels hope, enthusiasm, and engagement. Most importantly is that one needs to be resilient; sometimes it takes a bit longer to achieve the desired outcomes. Yet even, if it is not as easy – the shift team is very helpful and provides the necessary resources.
So, if you would like to join a great team of talented and kind people – the best thing is to do is to get in contact above. It is the starting point for a wonderful journey – your project will its way to you, one just needs to keep going.
I have started doing this because I appreciate very much what shift.ms has done for so many people with MS. I love the story of how it all began and how it grew, especially because at the time of my diagnosis there was no MS community around me that I could turn to, no one I could talk to that would understand. And Shift.ms exists exactly for people that need a network of other MSers that understand each other and help each other be more positive about their lives.
The twitter takeover manager position was offered to me by Sarah after I contacted her and told her I would love to volunteer with anything they need. I have done it for two years now and it’s just great to see how involved people get when they take over the account over weekends. The feedback from our followers is amazing, everyone shares stories, listens and understands. The vibes are all positive.
I am a proud MSer, diagnosed 4 years ago. I enrolled as the “MS Reporters web content manager” for Shift.ms, about a year ago. MS reporters has been getting some nice and solid information about MS and what not to all us MSers, and the most important part people like us keep it working. And I have been a part of it! It is really nice to know that you have been helping this community, people that would, not just could, understand you and that know what you are going through. There are many of us out there, why don’t we just help each other? Each one of us can make a difference, bit by bit. It doesn’t take much, just the will to be there and help!
Want to share your story of being part of The Energy?