shift.ms

Hi guys, I’m due to start Ocrelizumab early Feb. I’ve been thinking the last week or so that there’s hardly any data on it as it’s so new. Just 1 years worth from America. I did exactlty what my consultant told me not to do and googled it. Is anyone else reluctant about taling something th…

I have never posted on a site like this before but I need to feel there are others out there like me, so I thought I should take the plunge and introduce myself. I’m 51yr old mum of two almost grown-up boys and have had an MS diagnosis since 2001. Apart from periodic numbness and tingling i…

I read recently on the finding that brains of people with MS may well have high levels of aluminium: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6121957/ Does anyone else better understand the implications of this research. It seems quite significant and relatively new. A bit of a google tells m…

I was diagnosed with MS in June of 2018. According to my tests I’ve had it for over 2 years. No lesions on my spine, however one pretty close to it. My neurologist recommended Ocrevus infusions which I began on Late November 2018. I go for my 1st full infusion On April 26th this year. The onl…

I have had nausea for months. I have lost so much weight and spend many days in bed. I have been to multiple dr. appts for this and have received no help at all. Dr. Google. I hate to admit it but what else can you do when you are desperate……….. So, I guess some people with…

Hi guys. Having a MRI scan this week with contrast. I have one lesion on spinal cord. I am worried more our going to be found. Brain scan no change in two years. Spinal cord lesion is causing MS hug they told me so spinal cord being scaned. Still on Rebif. Last Relaspe was January 2018. Otherwise d…

I am a 55-year-old woman and I have been suffering from MS for 40 years! I have had very severe attacks, but persistently and with supplements I move, travel and enjoy as far as I can live! I already have a granddaughter at 9 years old! It is very difficult and hard in Bulgaria for MS patients, but…

Ok so just had my MRI on Monday. 2 years after lemtrada – 1st round. I haven’t had any relapses! Wahoo! But my mobility hasn’t really improved. Am I relying on the drugs too much? Should I be doing more on top of running a home single handedly and working full time? Should I find the hour…

My gorgeous niece who will graduate as a doctor in the summer wrote this poem for my birthday…I wanted to share it with you all…I think all of us fighters deserve this…. I didn’t find my hero in a fairy tale book There was no knight, or princess, nor dragon nor cook She appeared…

I’m now four months post hsct! So far so good. Mobility has increased, don’t need to go to the toilet every five minutes now, i can exercise for forty-five minutes a day, i no longer use crutches except for long distances. If i had any regret, it would be that i waited to getting to 5 o…