shift.ms

MedDay Pharmaceuticals is developing high-dose pharmaceutical biotin for treatment of progressive forms of MS. Currently in phase III development, there is an ongoing clinical trial in Europe and the US named SPI2. Some articles I’ve read argue that this treatment can stop progression and has…

This is hot off the press and has upset people in the medical profession, as well as UK PPMSers. There’s already a campaign to contest this decision :- https://signup.mssociety.org.uk/page/30088/petition/1  

Hi Guys. Suffering from pins and needles again. Just wanted to have a rant. Soooooo annoying and feeling low mood. Also annoying is people trying to manage my MS. Been asked three times in a conversation if i am going to be tried when arranged to go out. Rant over. LJl.🤹‍♀️

Hi, sorry to be repetitive with my subject but it is a real concern for me and a huge irritation for my wife ( she has MS). Both of our lives have been turned upside down, shook around and then stamped on, my wife has gone from a high level career with the NHS to needing help to eat and general mob…

Hi, So I had an appointment woth my nero a few months back and he refered my to the Urology department. After looking into what the appointment would involve ive decided i wanted to cancel it. During this the lady said do i wish to discharge thinking that this just meant canceling the appointment …

Hi all Have you ever of this treatment Has it been released I read its similar to gilenya Maybe less effectiveness in ppms and leas side effects Or maybe the news are wrong https://www.mstrust.org.uk/a-z/siponimod

Hello to all you lovely people. I used to recieve dla higher rate mobility and care and i a friend of mine suggested i should apply for P.I.P and helped me with filling out the form as well. I went for assessment in end of feb beginning of march i think and the P.I.P got refused cause the assessor …

Hi everyone, I’m Emma. I’m a 37yr old single mum who has had RRMS for 12 years. I have recently retired through ill health as a primary school teacher and am struggling to adjust to life after a career that I loved and gave me enormous fulfilment. I am volunteering at the local hospital…

Finally saw the new Neurologist. She called about my MRIs yesterday. She acknowledged that yes, all the issues I had from June through August were from a new active lesion. She wanted to start me on 5 days of mass steroid infusions. Since it was Friday she wanted to admit me to the hospital for 5 …

I received a copy of the letter that went to my gp from my most recent neurology appt that finally diagnosed RRMS, after 4 months (and 3 years) it actually feels a huge relief to have a formal diagnosis. I can stop saying ‘i probably have’ and start moving forward with managing what I n…