shift.ms

Hi Guys, this is my first post and I am just writing this now because I really feel like I could do with some help. I don’t know if anyone else feels like they are trapped in their own head but I do. I was formally diagnosed with MS over summer but have been living with the symptoms for about…

Hi Guys, So a massive step for me as of late but I have finally re-joined the gym!! It was a huge leap for me as I used to be so active a few years ago with basketball, boxing and going to the gym and then after difficulty with my leg I had to give it up. Working out again was something that was …

I have just watched the BBC Panorama programme about Universal Credit and I am now scared. I have sorted out my PIP and ESA benefit and knowing the stress it causes I am not sure a want to apply for Universal Credit. I need to find somewhere to live because I am struggling with the strength in my l…

When I log in I see a “Join the conversation link”. What is that in the red square? It’s meant to look like a watch but it clearly isn’t as no matter what I do I cannot hold a conversation with my watch! It tells the time and date, never needs charged and has no buttons but …

Hi All I was diagnosed in September and I will be seeing the neurologist next week to discuss DMDs. I’ve been given some options to look at and I feel a bit lost at all the options. Does anyone have any experience they can offer with the drugs they’ve tried?

For those living in the UK with personal care needs, how do you find the people you employ? I live in Southampton and until recently we had a Centre for Independant Living that acted as a safe brokerage service between those those looking for work and those needing PA’s to employ. They have had t…

Hi all, thought I’d post a follow-up to a question I posed a couple of months ago about travelling with Copaxone without access to refrigeration. I bought a Frio Cooling Wallet, which was originally designed with insulin meds in mind (I bought it from an online diabetes supply shop). It’…

I am ineligible for the NHS shingles vaccination a) because I’m outside the age group it’s offered to and b) because it’s a live vaccine. I take fingolimod which means that all live vaccines are contraindicated. (I’m told that the jury’s out with regard to live vaccine…

I am a keen cook and Mrs S loves a Sunday roast. I hate overcooked meat. To date I have only ever used a circular dial thermometer for meat. My concern is cooking joints of beef/pork/lamb more accurately. I have been told that the digital probes you can stick in and leave in a roast, with the moni…

I did an oil painting to express my MS experience, at a difficult stage. Has anyone else seen any MS related art?