shift.ms

Hi! This is my first post. I’ve had MS for almost 15 years. I was in my early 20’s when I was diagnosed. I’m a drama practitioner and writer. I’m in the process of writing a funding bid to create a piece of theatre exploring life with MS. I’ve never found a portrayal …

Hi All I was diagnosed in September and I will be seeing the neurologist next week to discuss DMDs. I’ve been given some options to look at and I feel a bit lost at all the options. Does anyone have any experience they can offer with the drugs they’ve tried?

When I log in I see a “Join the conversation link”. What is that in the red square? It’s meant to look like a watch but it clearly isn’t as no matter what I do I cannot hold a conversation with my watch! It tells the time and date, never needs charged and has no buttons but …

I would like to tell my journey. 2010 my husband was an over the road trucker driver. I was a cosmetology instructor walking 4 miles a day. 4 kids living at home, depending on me. One morning started as usual I woke up at 5, took a shower, as I was doing my makeup, I noticed something was off, m…

I have just watched the BBC Panorama programme about Universal Credit and I am now scared. I have sorted out my PIP and ESA benefit and knowing the stress it causes I am not sure a want to apply for Universal Credit. I need to find somewhere to live because I am struggling with the strength in my l…

Hello Shift.MSers. I was diagnosed with early PPMS (male, 28) in july, 4 months after breaking up with someone I still love. The break up was slow, painful, emotionally violent. Today I went for a drink with this person, mostly to share my MS diagnosis and my treatment plan with a newly approved …

Hi Guys, So a massive step for me as of late but I have finally re-joined the gym!! It was a huge leap for me as I used to be so active a few years ago with basketball, boxing and going to the gym and then after difficulty with my leg I had to give it up. Working out again was something that was …

Hi Guys, this is my first post and I am just writing this now because I really feel like I could do with some help. I don’t know if anyone else feels like they are trapped in their own head but I do. I was formally diagnosed with MS over summer but have been living with the symptoms for about…

For those living in the UK with personal care needs, how do you find the people you employ? I live in Southampton and until recently we had a Centre for Independant Living that acted as a safe brokerage service between those those looking for work and those needing PA’s to employ. They have had t…

Hi all, thought I’d post a follow-up to a question I posed a couple of months ago about travelling with Copaxone without access to refrigeration. I bought a Frio Cooling Wallet, which was originally designed with insulin meds in mind (I bought it from an online diabetes supply shop). It’…