I have had MS for many years, and have had frequent bouts of spasms in my oesophegus. This is not indigestion, has no relation to what I may have eaten and can occur at any time. I have had a camera to check for any nasty abnormalities, with no result. It is extremely painful, can last for up to a …

Any medication recommendations for fatigue other than Modafinil? That medication made me nauseous. I’m currently taking a low dose of Ritalin and my neurologist doesn’t want to increase the dose. Thanks!!

Hi, i am 15 months post Lemtrada round 2 and after a horrific ten days in hospital this month I have been diagnosed with ITP. I am struggling to come to terms with this diagnosis as it is a direct result of the MS treatment that I actively asked for until they gave it to me. Even though I have a cl…

I’m running a 10k for St Paddy’s tomorrow. 🍀🏃🏼 Picked up my wee race number yesterday. So excited so everyone say a prayer the sensation in my legs stays until at least tomorrow lunch time lol. Running has literally been such a help since I have been diagnosed. It was actually…

Has this happened to anyone else? I just tried to step over the dog, and because of my bad balance, I kicked the doorframe and really badly stubbed my toe. My whole leg turned to jelly and felt completely out of control. I had to hold onto the door frame for several minutes before I could try to…

Hi all, I had my scan 6 months after starting Gilenya (Fingolimod) and it showed a new lesion. The rest were stable. The nurse told me not to panic as new lesions can appear when patients are between treatment (I was off treatment for a month between Tecfidera and Gilenya) so I will get a scan in a…

For anyone who has ever worried or wondered what it is like…

I’m in pain everyday and how I manage it!

I have created this video about fatigue and how I manage it…