Hi, I just wanted to ask how often anyone on Gilenya have MRI’s. I was previously on Tysabri and I had them every four months. I changed to Gilenya in 2016 and I have been having them every four months as well. After my last visit to the clinic I received an MRI appointment for a years time. I…

The other day, I asked a woman out on a date. She was pushing for time together. As soon, as I mentioned MS. The date went out the window. I know I’m no oil painting. It does knock my confidence, with a label on my head. Maybe a life of belong alone, will give me more contentment. Than I life…

Doubt anyone remembers me but I’ve posted on here since 2016. Long story short but got CIS diagnosis in January 2017 and started on Rebif until December. Taken off due to low wbc meaning I couldn’t have elective surgery. Plan then was for 6 monthly mri/appointments and close monitoring. My case…

Good morning.. Been away from here for a while. Been on a bit of a downer. Now I’m picking myself up a bit. The high and lows of this MS is more of a state of confusion. What was easy before, is a bit harder now with no reason. So I just come to the conclusion. Do what I can, when I can. Hav…

Am I crazy? I just got my annual MRI back, official read is no significant change. So why am I feeling worse? Fatigue and pain, worsening numbness, tingling, balance off. Or, am I just magnifying all my old symptoms in my head? How can I feel so bad and look seemingly so good? I need some grounding…

Hi again everyone 🙂 so I’ve just got the dreaded brown envolope declining me for PIP and scoring me 0 points on everything has anyone else had this problem? They’ve pretty much lied on my report saying I can see fine even though I’ve had optic neuritis in both eyes in the past 5 month and …

Hi everyone, so apart from a year on tec I always try and manage my MS with lifestyle changes however this cold weather and flu has really hit me. Therefore I am considering trying another drug. I am very stubborn, so if I decide I don’t like something I will just stop taking it. So I have read a…

I’ve just recently started back to work on a phased return after being off for nearly a year. I had been feeling so much better, no symptoms for ages. My energy levels were good and the anxiety had settled. Which is why I decided to go back. I’ve just completed my 3rd week and all this week I …

Hi guys, I’ve recently been diagnosed with this disease and wanting to get some input on the DMD. Which ones have worked for you and had very few side effects? Thanks Emily