shift.ms

I am ineligible for the NHS shingles vaccination a) because I’m outside the age group it’s offered to and b) because it’s a live vaccine. I take fingolimod which means that all live vaccines are contraindicated. (I’m told that the jury’s out with regard to live vaccine…

Hi! This is my first post. I’ve had MS for almost 15 years. I was in my early 20’s when I was diagnosed. I’m a drama practitioner and writer. I’m in the process of writing a funding bid to create a piece of theatre exploring life with MS. I’ve never found a portrayal …

Hi all! This is my second post and it’s update plus a big thanks to everyone who responded. I have completed my first week back at work, haven’t been doing my full time hours but I can’t imagine it will be long before I am. When I first posted after being diagnosed I had been deal…

Hi all Just had the brown envelope arrive, such fun!!! I’ve filled out the official secrets act no end of times, plus I hold way above the clearance to be capable of accessing certain areas. To get this they asked very personal questions about me and my family which is kind of understandable.…

Well that’s the email off to my MSP. Will it make a difference? Probably not as I am not in the target group of his party.

Hi All I was diagnosed in September and I will be seeing the neurologist next week to discuss DMDs. I’ve been given some options to look at and I feel a bit lost at all the options. Does anyone have any experience they can offer with the drugs they’ve tried?

Hi there, I have just been diagnosed with P.M.L. scary sh-t!!! 1 in 1000 chance and I was the chosen one! Needless to say my Tysabri infusions have ceased. I am currently paralysed on my left. Help!!! Claire x

I would like to tell my journey. 2010 my husband was an over the road trucker driver. I was a cosmetology instructor walking 4 miles a day. 4 kids living at home, depending on me. One morning started as usual I woke up at 5, took a shower, as I was doing my makeup, I noticed something was off, m…

Hi Guys, So a massive step for me as of late but I have finally re-joined the gym!! It was a huge leap for me as I used to be so active a few years ago with basketball, boxing and going to the gym and then after difficulty with my leg I had to give it up. Working out again was something that was …

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Toget…