Hello, I’ve read many horror stories on here and I’ve just had a letter saying I have been awarded zero points! Zero! They’ve just said for example “you said you couldn’t plan a journey, I’ve decided you can” “you said you can’t prepare a simple meal, I’ve decided that you can�…

Hi guys I have RRMS and I believe LPR has happened to me since I was dx 6 yrs ago. Have been referred to ENT clinic for suspected globus by my GP. Has anyone else had this and if so,how did you overcome it? 🤔 Many thanks for any input.

Good evening! It is a great pleasure for us to know about your activity in multiple sclerosis in your country! We are new community of MS in Ukraine and want to get information about this problem from abroad. “Sanofi” company recommend us to discover your activity in this sphere. Now we have m…

Hey everyone, I’m just wondering how you received your first MRI results, was it by letter or phone call? I am due to receive a letter concerning them after it is dictated, is this a good thing? Meaning if something had come up on the scan, surely the neurologist would call?

Meeting with my neurologist tomorrow to decide on what treatment I’ll be going with (Ocrevus). How long after the appointment does it roughly take to begin treatment? Also is it possible to delay treatment? I only say this because I have been feeling fine physically. But I pretty much suffer …

Do you guys have an app for Shift MS? 🤔 As would be easier than me going through my emails.

Hey guys I’ve been going through a tough time mentally recently. I’ve been told about endep to help with anxiety and better sleep at night. I’m currently on gilenya has anyone tried endep and what’s the experience?

Hi all, I had my scan 6 months after starting Gilenya (Fingolimod) and it showed a new lesion. The rest were stable. The nurse told me not to panic as new lesions can appear when patients are between treatment (I was off treatment for a month between Tecfidera and Gilenya) so I will get a scan in a…

I just stumbled across a neat presentation, with great graphics, from Professor Gavin Giovaninni. It is good to see comparative images of the different expected outcomes depending on how your MS is treated, when and with what. Note: I know the Slideshare App is often rubbish when viewed through a …

Hi all, had my reassessment two weeks ago at home by DWP expert, she said after assessment as far as she was concerned as i was over 65 and had PPMS she didnt think ineeded to be reassessed again and that she thought i should remain on full PIP , but it wasnt her decision she could only advise . Go…