You would think after having MS for over 20 years I’ll be use to going, but I think this time round I know I’ve gone worse and just feel weak. Not on any meds cause I’ve tried 7’of them they all made feel worse. What do I do if my MRI scan shows new lesion or more damage, I’m SPMS so I f…

My journey, so far, with MS has been.. well… I don’t really know how to answer that. I have more than what I would consider weakness, to my right side. I have footdrop to my right foot and my right hand is very temperamental. I’ve heard this is common but have yet to meet anyone …

It has been 6 months & I finally meet my loser specialist once again. I will try to be respectful while demanding a neck MRI. I have been 100% correct every step of the way, yet been ignored until… Oh well, life goes on…

Hi all This week marks a real milestone for me and the Shift.ms community. I am not only extremely proud but also excited to announce that the forum has welcomed its 20,000th member. We could never have imagined the community would get to this size when we started out. This wouldn’t be possible w…

I started Monthly Tysabri infusions in November. A couple months ago they got a new nurse. Both times I’ve had her she has had a really hard time starting a line. It’s weird because I’m pale with very easy to see veins and I’ve never had any trouble with someone taking blood or starting …

Lemtrada is the medication option I’m most interested in (if I HAVE to HAVE one lol.) I have my next appointment on 22nd May to discuss medication etc. Want to go prepared and I literally know nothing so please share your experiences with me? I basically really mostly want to know how much ti…

Hello! I’m on the fourth week of taking Tecfidera, and over the past few days have developed the awful stomach cramps and sickness which I’ve read are a quite common side effects. Ms nurse says that if I can just work through it all, it should ease. I would really appreciate some of yo…

Hi all and I hope everyone is doing well. Anyway I just thought I’d post on here that I got my recent MRI results after having my scan back in February which was 1 year after having Round 2. Anyway the good news is that once again it showed no new lesions!!! Just thought I’d give you al…

Hi, i am 15 months post Lemtrada round 2 and after a horrific ten days in hospital this month I have been diagnosed with ITP. I am struggling to come to terms with this diagnosis as it is a direct result of the MS treatment that I actively asked for until they gave it to me. Even though I have a cl…

Hi there, so lots of recent reports around the EB virus and MS floating around. One of the doctors at the recent Berlin conference (Shift video clip) was specific about linking MS to contracting viruses in the teenage years. So, I had glandular fever really badly when I was fifteen, off school for …