I had my first MRI on Monday morning. I wasn’t due to have one until end of March April, however all my bloods came back clear and they put me in for the next cancellation which was Monday. I know it’s different for everyone but usually how long do you have to wait to hear back from you…

Hi everyone, Hope you are in the best of possible health.. I was diagnosed a week ago. The consultant just told me I have MS. Silly me went alone thinking it was like the last appointment where she just told me more tests will be done and it probably won’t be MS.. Any way, my mind went blank. I r…

I’ve always been optimistic when I think about my health issue, but now I’m starting to have second thoughts.. I divorced my x-wife because of the nagging and crazy physical abuse I was facing, we have two kids 2y and 3y old, and my only goal in life is to stay in good shape so I can pr…

Getting extremely (insert expletive) offed. Cant get Ocrevus on the NHS, cause it’s not cost effective. Had a bad walking day yesterday, struggled even with the wife on one side and my mate on the other. Done a bit of Googling and see that there is medication out there called Fampyra (canR…

Newbie but not new with m.s. Diagnosed almost 16years I was put straight onto Rebif and told not to have anymore kid’s Had 2 at the time they were 3 and 6 😉 Rebif worked for me for 12 years Became immune to all the interferons so went onto daily injections of copaxone Came off them because…

Hi All, I will be having my first infusion soon of Ocrevus and ive been told about the before and during treatment but I am looking for any personal stories about the after bit. I wondered how people felt after their infusions, did you recover well or did it take some time? Did you have any side …

hello everyone the reason is my brain is well damaged might make me disabled anytime with treatment or not that’s first the majority or users will be disabled sooner or later that’s second but what’s most important is and the main cause my brain is damaged already all my body orga…

I’m currently in the Nuro hospital awaiting my MS appointment follow up since my last relapse. Iv got a lot of questions… should I still be on Conpaxone??

Hi, I was diagnosed October 2018 and I’m getting close to treatment now, it looks like I am going to be offered Ocrelizumab or Lemtrada. I was wondering what peoples views and experiences are and were of these 2 treatments? I recognise that all our symptoms and the way we react to treatments …

Further to my earlier post about how I have at least found one good thing about this f..,lipping condition – being able to write and focus on that – I’m so happy to say that my new publishers are as good as their word. Just a month after they published my new novel, The Dark Side …