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Swallowing and choking

I’m just entering the crap gap and things are beginning to get worse or return. Swallowing is complicated and I’m getting upset. I hear from many people that their swallowing is tricky, that they (like me) seem to breathe in too soon and choke, or swallow saliva the wrong way and choke, or whatever....

Brighton, United Kingdom

@LeParc

Moving from Gilenya to Mavenclad

Hi everyone, Has anyone had experience of moving from Gilenya to Mavenclad and if so what did it involve e.g. how long share you taken off Gilenya for etc. Many thanks in advance for any replies.

@shiftms-polls

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Tired of medical jargon with MS?

We've just launched a new Shift.ms poll. Take part below👇 A recent US study linked MS fatigue with reduced brain power so we want to know: • Does the way MS is currently written and spoken about make you feel excluded or disconnected? • Do you feel empowered and supported by the language used aro...

How much do you agree or disagree with the following statement: MS language is accessible and easy to understand.

Total answers: 317

@LesleyT

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Exhausted

Last week we decorated and I found it all very stressful I am exhausted and feel drained and washed out. After my weekly injection I spent the following day stripping wallpaper and sanding skirting boards and think I may have overworked myself I can’t seem to catch up even though I’m sleeping quite...

Cannock, United Kingdom

@JMon

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Packing for Hols/Vaca #MSUnfiltered

So like many I have the pesky bladder and bowels issue. Going on a cruise and starting to buy my supplies . Going for one week and I am going to pack 4 packs of disposable underwear..... figure I'd feel safer over packing then under 😉 #MSUnfiltered

, Ireland

@shiftms-polls

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New treatments question 💊! Have you heard about BTK inhibitors?

A year ago Professor Gavin Giovannoni published a blog about a new group of treatments in development called BTK inhibitors (link in comments). With multiple trials ongoing, Gavin wondered if these treatments could “usher in the next generation of innovative MS treatments”. At the time, the post...

How do you feel about BTK inhibitors – a new line of MS treatments in development?

Total answers: 280

@shiftms-polls

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The emotional impact of your MS diagnosis

Cast your mind back to that moment when you were sitting opposite your doctor and told “it’s multiple sclerosis”. Three words that are nothing short of life changing. When we speak to MSers about their diagnosis appointment, it’s clear that how those three words are delivered, and the care that im...

MS & trauma. On a scale of 1 to 5, with 1 being not traumatic at all and 5 being extremely traumatic, how would you rate the emotional impact of your MS diagnosis?

Total answers: 1100

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@Natters17uk

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Hair snapping off at 1-3 inches

Hi everyone Not sure if this is my MS, perimenopause or genetics or a combination of all of them. Background, I've had waist long hair since childhood. My mum had hairloss during cancer treatment in her 40s. I'm 41. Shortly after my first and second ocrevus infusions I noticed my hair was becoming...

Plymouth, United Kingdom

@Bogturtleman

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Uncertain about the future

Hey my name is Josh, I was diagnosed last February. I was dealing with symptoms for along time they kept blaming my type 1 diabetes but I knew it was something more for Awhile. I got 3 older sisters and 2 outta 3 have diagnosed multiple scelrosis and my other sister might also have it but in denial ...

Cambridge, ON, Canada

@Dalex

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BACLOFEN

Has anyone ever took BACLOFEN 10 MG TABLET? I'm still going through the process of starting Mayzent, but after telling my doctor about the feeling I was feeling after my workouts, he suggest this medicine to help with my stiffness in my left side of my arm and leg. It's like I can move it and feel ...