Kesimpta and new symptoms
Hi all, I’ve been on Kesimpta for exactly one year (I was previously on Tecfidera for a long time which worked well until a yearly scan showed new lesions so I was taken off and put on Kesimpta).
I consider myself very lucky as I don’t really have any MS symptoms, any relapse I have had I’m made a full recovery from apart from one which has left tingling around my face when I’m stressed.
Anyway, I have numbness and tingling around my right foot and lower leg, I have my yearly neurology appointment soon as well as my yearly MRI scan so I guess that will show if there are new lesions.
So I’m wondering, please can anyone share their experiences with Kesimpta and mild MS activity. I’m worried when I tell my neurologist that she will want to take me off Kesimpta but that will feel like a knee jerk reaction to me!
What would other drug options be at this point?
Has anyone had experience of how much activity they allow before being pulled from one medication?
I feel like I need to do some research on my options so that I can go into my appointment with some knowledge!
Thank you in advance for any thoughts and guidance
Briumvi, Ocrevus come to mind.
You have the power! This is your body, your disease, 🦠, your life. The docs look 👀 at test results, and go off current agreed to science, but the decision needs to be yours, in the end, for every change. Get yourself hyper informed, and stand your ground! Only YOU actually care about your full best interests, so be your own best champion. Listen to the science, trust your docs, but keep your agency, make your own decisions. Personal experience talking.