Positive update !
I started my treatment on the 2nd of Jan and I am really feeling so much stronger, a lot less tired and I am finally back lifting the weights that I was at a year ago before my first flare of symptoms.
My journey has been so long and emotional, I basically was forced out my job because I couldn’t do the commute in and had to take time off sick, I lost a lot of friends who were not there for me when I was feeling unwell and wasn’t trying to understand.
I now have a new job and I am finally coming to terms with my new “normal”. The friends I have I hold so close to me because they are so kind and supportive I’m truly grateful . everyday is a bit different but I’m exactly where I should be and remaining positive and trying my best🥹

Best of luck to you 🤞🏾and I hope your journey continues more ups than downs. This desease is bad enough all on its own so celebrate all wins, however small. x
Your journey sounds so much like mine. My friend “broke up with me” and we have no communication. She was one of my oldest friends and was even one of my bridesmaids. I went through an identity crisis—who am I without my energy, mobility or cognitive quickness? I am in a much better place and also accept my new normal. I am happy for you and your journey. Keep learning and moving forward. Congratulations 🎉