@tingilingi 

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tingilingi

My story(open for tips and tricks 🥰)

Hi guys, here's my story. I guess it would be nice to share it with people who would understand how I feel. It all started with my overworking myself at my nursing job. I noticed that my back is tingling when I bend my neck but I ignored ofc because I thought that it must be pinched nerve.. I never had this feeling before so I went to my doctor but he just brushed it off and sent me to orthopedic but I got the appointment in few weeks. It was finally time for my vacation with my boyfriend so I was very excited and I tried to forget about everything job struggle and tingling. We went to a beautiful hotel and a nature park.. I enjoyed myself so much until the night that changed my life. Since I always loved the sauna and I was so tired after walking whole day we went and you can imagine what happened. My tingling got so bad that it effected my hands and legs too. In that moment I was only thinking about heart attack because I couldn't feel my left side. Oh the panic attack.. My boyfriend said that we certainly overdid it with walking so I tried to fall asleep and hoped it would go away in the morning 🤣 It was the same crap ofc in the morning and I needed to drive home 2 hours.. super dangerous because I couldn't see properly. I went to emergency room that day and they brushed it off saying that I'm just pretending and my neurological response is normal.. they even say that they are 99% sure I don't have MS. I insisted for them to do something because I don't feel right. They left me at hospital and did MRT and spinal tap. After two days the same doctor came in and she said so cold Okey you were right you have MS. You should be happy because some patients come here and die after one month. My world crashed and I said I don't want to live like this and end up in a wheelchair. Her answer was that I should go to psychiatry ward if I'm suicidal.. I would never forget it and there everything in me just shifted and depression and anxiety attacks arrived.. overthinking consumed me.. so they decided to put me on steroids and antidepressants. Fun fact I'm allergic to steroids 😭 the rash..the itching.. no sleep.. I was done with my life. I went home after 7 days in hospital and I was just shell of myself. It took me a long time to grasp myself and pull myself out of the darkness of depression. I wouldn't say I'm good now or anything I just think I'm safe from suicide. I still have symptoms to this day but they are manageable. The fatigue is my shit friend and I hate it. I'm also on Zeposia 0.92 since March 2025. Thank you for reading and understanding. Btw English is not my mother language so sorry for the grammar.. and it's 5am here in Germany 🤣 Also if anyone from Germany wants to connect I'm open (or anywhere else) 🥰😉 Have a nice day everyone, you can do it ❤️
@messy100

I enjoyed reading your story. It’s crazy how the medical profession doesn’t believe us. I went for years having my symptoms ignored or called something else. I’m glad you get diagnosed pretty young and I hope your DMT keeps things under control for you.

@fdr99

Unfortunately i had a similar experience except my doctor did tests that cost thousands of dollars intially his diagnosis was that i had a stroke and had brain damage afterwards he did an MRI finding lesions all over then finally changing the diagnosis to MS and put me on corticosteroids