The art is learning how to pace yourself to live well with MS , it’s taken me about five years , and there are times when I still need reminders to say no and rest up! I try to go to bed at a similar time most nights, and get up a regular time. I make time for mindfulness daily, take my DTMs, plus Vitamin D and Flaxseed oil ( the latter generally on my cereal). I know the hot weather we’re experiencing will exacerbate my MS symptoms ( fatigue, cogfog, footdrop). Also with being immunosuppressed I can easily pick up an infection, I’ve got another repeated chest infection requiring a 10 day course of antibiotics rather than the standard (NHS uk) five day prescription! I try to avoid a lot of inflammatory foods eg highly processed ones , red meat, eating a lot more plant based products. Hoping you find you own path to living well with MS, it can be done!

Unfortunately it's a difficult thing to adapt to. MS can be unpredictable and while sometimes some symptoms come out of nowhere, others times they seem to creep up on us. Pacing is a difficult thing to learn but it does help, it took me years to get to grips with reading subtle clues I was overdoing things and need to rest. Sometimes I still don't manage my energy well now. It definitely does get easier though, and in my experience if you communicate with your MS nurses and neurologist and listen to your body, you'll be surprised how little changes to lifestyle can have a big impact. Also, never hesitate to vent, MS is frustrating at the best of times