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@sophiemg 

Last reply

sophiemg

Information overload!

Hi all, I’m new to this so please bare with me. I had my first in person MS appointment yesterday. Lots of information of pathways to choose and set to have a lumbar puncture in the coming weeks to finalise the diagnosis. Here’s the difficulty I’m experiencing: A relative of mine also has RRMS. To which they treat naturally, and that’s their choice. I am looking at starting Kesimpta treatment. I’m finding whenever I talk to family I’m getting more of the negatives than the positives. For example, when I explained I’d been referred to have an LP. It was “I refused this. Do you know it is excruciatingly painful?” Then when I expressed my interest in Kesimpta, I get sent a list of the negative side effects. In short, im trying to figure out my own path and management of MY MS. But also here to hear from everyone about their genuine experiences with LP, Kesimpta and so on. I feel like my conversations so far are very one sided 😅 Would love to hear from you all!
First posted on the Shift.ms app
5
@claire_
@claire_
 

I was scared ahead of the lumber puncture. This was purely because I remembered my grandfather having one and being told it was dreadful. The reality was that it was not so bad. The worst part for me was when the doctor was trying to find the best place for the injection. After that it was fine. I think it is different for everyone but it really was nothing too awful. all the best for yours

1
@silvijam
@silvijam
 

I can tell you that LP is not bad at all based on my own experience, I was told to eat as normal before the procedure, and to drink more water and coffee afterwards to stimulate the brain to replace the lost liquids. I didn't feel the needle or anything, just a bit of tingling in my brain but this is really only for a few moments. So don't worry, it's not all bad always and for everyone! I also get kesimpta and the first time was rough but once you sleep off the fever and fluish symptoms, it's fine and it's only once a month so no big deal with the needles poking you.

1