We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2026 Shift.ms

@serenawolf 

Last reply

serenawolf

My neurologist basically told me to get over it

I've had active and worsening symptoms for a few years but no lesions showed on my MRI (taken two years ago), and my neurologist was very dismissive so many times I gave up for awhile. Finally went back to him, explained my worsening symptoms, basically begged for help for a diagnosis or another referral and he just said, we'll check back in another year after you check with gynocology and physical therapy. These are definitely not gynocological issues, I can barely walk some days, I tremor so much I can't do my job as well, and I get horrible vertigo in the heat just going from my car to my front door, let alone going across an entire parking lot to get groceries. If it's not MS, which two of my other doctors really think it is, fine, but why won't he help me prove it isn't and figure out what it actually is?
First posted on the Shift.ms app
6
@St1gzy
@St1gzy
 

Comment deleted.

@St1gzy
@St1gzy
 

Some neurologists have great bedside manner, some unfortunately don't. The diagnosis process itself can be quite frustrating because neurologists have to prove you have MS and rule out a lot of other conditions first. In my case, I actually struggled to get taken seriously in the early days. I even found myself exaggerating some balance issues during assessments because I knew something wasn't right and felt I wasn't being listened to. I had around six junior doctors look at my first MRI and tell me it wasn't MS. It wasn't until my lumbar puncture results came back and an experienced neurologist reviewed my second MRI that the lesions were picked up and the diagnosis became clear. The diagnosis stage can be one of the hardest parts of the journey. Usually it's a combination of MRI scans, lumbar puncture results, blood tests and a neurologist putting all the pieces together. Once you finally have an answer, at least you can start making a plan and getting treatment.

2